Table 1.
Baseline demographics of participants in the in-person workshop and online wiki groups, n (%)
| In-person workshop group (n = 25) | Patients and caregivers in in-person workshop (n = 18) | Online wiki-inspired group (n = 26) | Patients and caregivers in online wiki-inspired group (n = 19) | |
|---|---|---|---|---|
| Age | ||||
| 18–39 years | 3 (12) | 1 (5.6) | 4 (15.4) | 4 (21.1) |
| 40–64 years | 14 (56) | 9 (50) | 16 (61.5) | 9 (47.4) |
| ≥ 65 years | 8 (32) | 8 (44.4) | 6 (23.1) | 6 (31.6) |
| Sex | ||||
| Male | 13 (52) | 11 (61.1) | 11 (42.3) | 9 (47.4) |
| Female | 12 (48) | 7 (38.9) | 15 (57.7) | 10 (52.6) |
| Role | ||||
| Patient | 12 (48) | 12 (66.7) | 11 (42.3) | 11 (57.9) |
| Caregiver | 6 (24) | 6 (33.3) | 8 (30.8) | 8 (42.1) |
| Health Care Provider | 6 (24) | - | 6 (23.1) | - |
| Policymaker | 1 (4) | - | 1 (3.8) | - |
| Marital Status | ||||
| Married | 22 (88) | 16 (88.9) | 19 (73.1) | 13 (68.4) |
| Common Law | 1 (4) | 0 (0) | 2 (7.7) | 1 (5.3) |
| Divorced/Separated | 2 (8) | 2 (11.1) | 0 (0) | 0 (0) |
| Single | 0 (0) | 0 (0) | 3 (11.5) | 3 (15.8) |
| Not Indicated | 0 (0) | 0 (0) | 2 (7.7) | 2 (10.5) |
| Employment Status | ||||
| Full-time | 14 (56) | 8 (44.4) | 12 (46.2) | 6 (31.6) |
| Part-time or casual | 2 (8) | 1 (5.6) | 2 (7.7) | 1 (5.3) |
| Retired | 9 (36) | 9 (50) | 10 (38.5) | 10 (52.6) |
| Unemployed | 0 (0) | 0 (0) | 1 (3.8) | 1 (5.3) |
| Not Indicated | 0 (0) | 0 (0) | 1 (3.8) | 1 (5.3) |
| Highest Level of Education | ||||
| Some High School | 0 (0) | 0 (0) | 1 (3.8) | 1 (5.3) |
| High School Graduate | 4 (16) | 4 (22.2) | 3 (11.5) | 3 (15.8) |
| College Diploma | 4 (16) | 3 (16.7) | 8 (30.8) | 8 (42.1) |
| University Degree | 17 (68) | 11 (61.1) | 12 (46.2) | 5 (26.3) |
| Not Indicated | 0 (0) | 0 (0) | 2 (7.7) | 2 (10.5) |