. 2016 Jun 27;4:52–57. doi: 10.1016/j.conctc.2016.06.009

Table 1.

Focus group guide.

1.
What do you know about clinical trials?^a

2.
Have you or anyone you know ever participated in a clinical trial?

3.
Has anyone ever invited you to participate in any clinical trial?

4.
Have you ever seen or heard about a specific clinical trial?

5.
How do you feel about people participating in clinical trials? And why?

6.
Do you think you would be willing to participate in a clinical trial? Why or why not?

7.
What things concern or worry you about participating in clinical trials?

8.
What would make it difficult for you to participate in a clinical trial?

9.
What would make you more willing to participate in a clinical trial?

10.
Do you think clinical trials are important for you or your family? Why or why not?

11.
If you have children, would you enroll them in a clinical trial? Why or why not?

12.
What would be some good things about being in a clinical trial -- for you, your family, or your community?

13.
How do you think others in your community feel about clinical trials?

14.
What type of research do you think is needed in your community?

15.
Is there anything we didn’t discuss about clinical trials that you would like to tell us or think we should know?

After this question the following definition was read aloud to participants: Clinical trials are used to find out if something new works, like a new medicine. Clinical trials are research studies that people participate in to help doctors find ways to improve health and care for diseases. In clinical trials, some people get one treatment and some people get a different or no treatment so that doctors can compare and see if one treatment works better than another one.