TABLE 2.

Top 10 priorities from the lymphangioleiomyomatosis (LAM) survey

1) Improving methods of identifying patients with active disease	81%
2) Availability of drugs for LAM in all EU countries	81%
3) All patients can access a specialist LAM centre	81%
4) Lung transplants should be available to more patients and with shorter waiting times	79%
5) Improving noninvasive diagnosis	78%
6) Patients can access treatments such as low-dose sirolimus/everolimus	77%
7) Improving care for patients in nonspecialist hospitals/services	77%
8) Opportunity for patients to hear about and participate in clinical trials	75%
9) Improving diagnostic biomarkers so that diagnosis is faster and more definitive	75%
10) Development of a European-wide organ donor service	73%

Priorities are listed in descending order of importance. EU: European Union.