TABLE 3.

Patient research priority areas

Diagnosis

How to develop better, noninvasive methods for the early diagnosis of LAM

Progression

How to develop better information about the likely progression of LAM, perhaps through biomarkers

How does oestrogen affect LAM?

An analysis of complications associated with the condition such as gynaecological complications

Do lymphatics play a role in improved survival?

Drug treatment

How effective is sirolimus as a preventative drug?

An analysis of the ovarian toxicity of drugs

Why do some individuals develop resistance or do not respond to treatment?

LAM: lymphangioleiomyomatosis.