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. 2015;3(2):159–167.

Table 2.

Observed (Weighted) Prevalence of Medical Home, Adequate Insurance, and Early and Continuous Screening Quality Indicators among Children with Autism Spectrum Disorders (ASD)

EPL household NEPL household Chi-squarep-value


N=3840 N=138


% SE % SE
Medical home quality indicator

 Met medical home criteria 24.0 1.11 16.6 4.80 0.31

1. Do not have usual sources for sick and well care 11.3 0.99 10.9 3.34 0.91

2. Do not have personal doctor or nurse 6.6 0.67 2.4 1.59 0.11

3. Encounter problems getting needed referrals 11.2 0.85 2.1 0.75 <0.01

4. Do not meet 1 or more needed elements of care coordination 59.1 1.38 54.5 6.49 0.67

  Providers do not spend enough time 30.8 1.33 30.8 6.27 0.34

  Providers do not listened carefully 20.4 1.39 17.7 4.24 0.21

  Providers are not sensitive to family values and customs 16.6 1.13 25.6 7.15 0.09

  Providers do not provide the needed information 30.9 1.41 28.5 6.00 0.30

  Providers do not help you feel like a partner in child’s health care 21.8 1.37 15.5 4.73 0.14

5. Does not have family-centered care 49.6 1.43 50.9 8.01 0.41

  Families need help in coordinating health care but did not receive 32.5 1.44 23.2 4.75 0.28

  Family dissatisfied with health care provider communication with other clinicians 47.5 1.44 42.3 6.58 0.68

  Family dissatisfied with provider communication with child care, education and vocational programs 32.2 1.34 32.1 6.00 0.67

Adequate insurance quality indicator

 Met adequate insurance criteria 49.7 1.42 48.5 7.98 0.82

 Has insurance 97.5 0.35 96.0 1.93 0.33

 No gaps in insurance 92.0 0.75 91.2 2.93 0.07

 Health insurance benefits meet child needs 73.0 1.26 73.7 7.13 0.92

 Non-covered insurance charges reasonable 59.8 1.38 64.9 6.58 0.46

 Insurance allows child to see needed providers 76.9 1.15 82.5 4.30 0.25

Early and continuous screening quality indicator

 Met early and continuous screening criteria 78.8 1.16 74.9 5.79 0.49

 Receipt of routine preventive medical care 90.2 0.80 91.2 2.92 0.76

 Receipt of preventive dental care 85.9 1.01 80.6 5.26 0.27

Source: The 2009-2010 National Survey of Children with Special Health Care Needs. EPL = English as the primary language; NEPL = Non-English primary language