Table 3.
Participants’ evaluation of the content of the CARES (N = 159)
| How important do you think several areas of well-being are to be addressed in the CARES, when the purpose is to comprehensively assess quality of life and care needs with the instrument? | Response distributiona | |||
|---|---|---|---|---|
| Very important | Important | Not so important | Totally not important | |
| Physical well-being | 90 (56.6 %) | 62 (39.0 %) | 2 (1.3 %) | 0 (0.0 %) |
| Medical interaction | 93 (58.5 %) | 59 (37.1 %) | 3 (1.9 %) | 0 (0.00 %) |
| Relational well-being | 82 (51.6 %) | 59 (37.1 %) | 7 (4.4 %) | 1 (0.6 %) |
| Psychosocial well-being | ||||
| Body image | 31 (38.4 %) | 82 (51.6 %) | 12 (7.5 %) | 0 (0.00 %) |
| Problems with memory and/or concentration | 68 (42.8 %) | 79 (49.7 %) | 7 (4.4 %) | 0 (0.00 %) |
| Stress, fear, concerns on disease and treatment | 84 (52.8 %) | 66 (41.5 %) | 4 (2.5 %) | 0 (0.00 %) |
| Dealing with family and friends | 63 (39.6 %) | 79 (49.7 %) | 12 (7.5 %) | 0 (0.00 %) |
| Dealing with the children | 78 (49.1 %) | 66 (41.5 %) | 7 (4.4 %) | 0 (0.00 %) |
| Concerns about work | 53 (33.3 %) | 77 (48.4 %) | 19 (11.9 %) | 3 (1.9 %) |
| Sexual interest and functioning | 43 (27.0 %) | 79 (49.7 %) | 27 (17.0 %) | 2 (1.3 %) |
| Miscellaneous | ||||
| Financial difficulties | 51 (32.1 %) | 80 (50.3 %) | 18 (11.3 %) | 5 (3.1 %) |
| Finding a partner | 22 (13.8 %) | 52 (32.7 %) | 37 (23.3 %) | 27 (17.0 %) |
| Difficulties with regard to treatment | 67 (42.1 %) | 66 (41.5 %) | 12 (7.5 %) | 4 (2.5 %) |
| Was there a topic missing in the CARES that you find important in an assessment on psychosocial concerns and care needs? | No | Yes | ||
| 132 (89.80 %) | 15 (10.20 %) | |||
aPercentages do not count up to 100 % due to missing values.