TABLE 2.
Study | Study Design | Recruitment | Social Outcome Domaina | Age Range at Diagnosis, Years |
---|---|---|---|---|
Baerg 200316 | Case study | Hospital/clinic | 1 | 6–15 |
Beale 200719 | Randomized trial | Hospital/clinic | 3 | 13–29b |
Bellizzi 201220 | Cross-sectional surveys | Population | 1, 2 | 15–39 |
Carpentier 201121 | Qualitative interviews | Hospital/clinic | 2 | 18–34b |
Dieluweit 201022 | Retrospective cohort surveys | Population | 2 | 15–18 |
Geue 201423 | Cross-sectional surveys | Population | 3 | 15–39 |
Goodall 201224 | Cross-sectional surveys | Hospital/clinic | 1, 3 | 15–32b |
Grinyer 200725 | Qualitative interviews | Hospital/clinic | 1, 2 | 15–25 |
Guy 201426 | Cross-sectional surveys | Population | 1 | 15–39 |
Keegan 201227 | Cross-sectional surveys | Population | 3 | 15–39 |
Kent 201328 | Cross-sectional surveys | Population | 1, 2 | 16–40 |
Kent 201329 | Cross-sectional surveys | Population | 2, 3 | 15–39 |
Kent 201230 | Qualitative focus groups, interviews | Clinic/other | 2 | 16–40 |
Kirchhoff 201231 | Cross-sectional surveys | Population | 1, 3 | 15–34 |
Kirchhoff 201232 | Cross-sectional surveys | Population | 2 | 18–37 |
Neal 200717 | Retrospective cohort | Hospital/clinic | 2, 3 | 14–30b |
Olsen & Harder 200933 | Qualitative/mixed methods | Hospital/clinic | 3 | 15–22 |
Parsons 201234 | Cross-sectional surveys | Population | 1, 3 | 15–39 |
Rabin 201335 | Qualitative interviews | Hospital/clinic | 3 | 18–39 |
Smith 201336 | Cross-sectional surveys | Population | 3 | 15–39 |
Smith 201337 | Cross-sectional surveys | Population | 2 | 15–39 |
Stegenga & Ward-Smith 200818 | Qualitative interviews | Hospital/clinic | 3 | 13–15b |
Tai 201238 | Cross-sectional surveys | Population | 1 | 15–29 |
Valle 201339 | Randomized trial | Other | 3 | 18–39 |
Zebrack 201340 | Cross-sectional surveys | Hospital/clinic | 3 | 14–39 |
Zebrack 200641 | Delphi panel | Hospital/clinic | 3 | 15–39 |
Abbreviations: AYA, adolescents and young adult; HRQOL, health-related quality of life.
Social outcome domains include: 1) educational attainment, employment, and/or financial burden; 2) social relationships; and 3) supportive care.
Reported age at study.