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. 2015 Mar 31;22(4):821–830. doi: 10.1093/jamia/ocv014

Table 4:

Comparison of permission and consent for healthcare and research

N = 774 Require Permission to Share Data for Healthcarea, n (%) Do Not Require Permission to Share Data for Healthcare, n (%)
Require Permission to Share Data for Researchb 623 (87.3) 61 (8.2)
Do Not Require Permission to Share Data for Research 37 (5.0) 23 (3.1)
N = 776 Likely to Consent to Share Data for Healthcarec, n (%) Not Likely to Consent to Share Data for Healthcare, n (%)
Likely to Consent to Share Data for Researchd 380 (49.0) 211 (27.2)
Not Likely to Consent to Share Data for Research 66 (8.5) 119 (15.3)

aIn order to have your medical information automatically shared for medical care, some organizations ask for your permission. Which of the following choices for permission would you most prefer a) To have information automatically shared unless you say not to, b) To be asked to share information before sending it, or to be asked except if there is a medical emergency.

bIn terms of using information from your EHR that is sent electronically to medical researchers, which statement best reflects your opinion: a) Ask permission first, b) No need to get permission.

cIf you were offered the choice to have your medical information automatically shared electronically with the different places where you receive medical care, how likely would you be to agree to it? a) Very or somewhat likely, b) Very or somewhat unlikely

dIf medical researchers asked to use your unidentified medical information from your electronic medical record how likely or unlikely would you be to agree to that? a) Very or somewhat likely, b) Very or somewhat unlikely