Table 3.

Descriptives of possible associated variables

Predictors (min–max possible score)	N	Median (min–max)	Category	N (valid %)
Age	213	13.1 (1.5–35.2)
Disease stage	213		Early ambulatory	66 (31.0)
			Late ambulatory	29 (13.6)
			Early non ambulatory	24 (11.3)
			Late non ambulatory	94 (44.1)
BMI	209	20.1 (5.9–44.1)
Age at diagnosis	213	4 (0–10)
Injuries	213		No	186 (87.3)
			Yes	27 (12.7)
Scoliosis	213		No scoliosis	109 (51.2)
			Mild scoliosis	66 (31.0)
			Severe scoliosis	38 (17.8)
Corticosteroids	212		No	72 (34.0)
			Not anymore	24 (11.3)
			Yes	116 (54.7)
Homeopathic remedies	213		No	99 (46.5)
			Yes	114 (53.5)
Physical therapy	213		No	17 (8.0)
			Not anymore	19 (8.9)
			With periods of no therapy	31 (14.6)
			Yes continuously	146 (68.5)
Practice at home	213		No	123 (57.7)
			On average once a week	38 (17.8)
			On average once a day	40 (18.8)
			More than once a day	12 (5.6)
			No	92 (43.2)
Hydro therapy	213
			Yes	121 (56.8)
Occupational therapy	213		No	123 (57.7)
			Not anymore	37 (17.4)
			With periods of no therapy	31 (14.6)
			Yes continuously	22 (10.3)
Splints	213		No	192 (90.6)
			Yes	20 (9.4)
Arm supports	213		No	195 (91.5)
			Yes	18 (8.5)
School/work	200		No	34 (17.0)
			Yes	166 (83.0)
Sport	198		No	122 (61.6)
			Yes	76 (38.4)
Hobby	198		No	34 (17.2)
			Yes	164 (82.8)
Pain limitations (0–140)	213	0 (0–140)
Pain severity (not shoulder) (0–120)	213	0 (0–120)
Distal pain frequency (0–36)	213	0 (0–24)
Shoulder pain (0–32)	213	0 (0–21)
Proximal pain frequency (not shoulder) (0–24)	213	0 (0–22)
Elbow pain frequency (0–12)	213	0 (0–11)
Stiffness frequency (0–84)	212	2 (0–84)
Stiffness limitations (0–140)	212	0 (0–140)
Stiffness severity (0–140)	212	2 (0–140)