Table 1.

Exploratory Factor Analysis Results for the HDQLIFE End of Life Concerns Item Pool

End of Life Concerns Items	Factor 1	Factor 2	Factor 3	Factor 4
I live my life to the fullest.a	0.87	0.16	−0.19	0.22
I am making the most out of the time I have left.a	0.83	0.22	−0.18	0.14
I am satisfied with my ability to make the most out of the time that I have left.a	0.82	0.16	−0.05	0.19
I am satisfied with my control over my medical care.a	0.76	0.02	0.08	−0.14
I am satisfied with my decisions about my healthcare.a	0.74	0.09	0.20	−0.10
I am at peace with the fact that I will die.a	0.68	−0.31	0.30	−0.12
My life has meaning.a	0.68	0.07	−0.18	0.31
I am at peace with death.a	0.65	−0.39	0.30	−0.16
I find meaning in my illness.a	0.63	−0.14	0.15	−0.08
I feel comfortable talking about my death.a	0.63	−0.22	0.23	−0.23
My illness strengthens my faith (spiritual beliefs, religion).a	0.58	−0.10	−0.01	−0.11
End of life planning is important.a	0.57	−0.11	−0.15	−0.05
There are important things that I still want to do with my life.a	0.55	0.03	−0.35	0.31
Matters regarding my estate are in order.a	0.53	0.10	0.09	−0.14
I think about my family members who died from the disease.b	0.04	0.76	0.50	−0.01
How often did you think about your family members that have died from this disease?b	0.01	0.76	0.56	0.01
I am concerned with how my death will impact my family.a	−0.04	0.16	0.99	−0.16
I am worried about how my family will deal with my death.a	0.02	0.14	0.96	−0.06
I am worried about how my family will cope with my death.a	0.00	0.16	0.96	−0.11
I worry about the burden that my disease places on my family and friends.a	0.02	0.27	0.71	0.03
Seeing other people with my illness scares me.a	0.06	−0.07	0.67	0.15
I am concerned about leaving some things unfinished.a	0.02	0.08	0.64	0.11
Seeing other people with my illness makes me think about my own death.a	0.01	0.15	0.63	0.16
I feel like a financial burden to my family.a	0.06	0.08	0.56	0.25
I am afraid of what the future holds for me.a	0.14	−0.13	0.54	0.29
In the past 7 days how often did you worry about the emotional burden that your disease places on your family or friends?b	−0.14	0.16	0.52	0.37
I am afraid of suffering.a	0.14	−0.18	0.51	0.19
I worry about my children inheriting this disease.a	0.02	0.25	0.46	−0.03
In the past 7 days how often did you worry about how your family would cope with your death?b	−0.11	0.06	0.45	0.48
In the past 7 days how often did you feel like a financial burden to your family?b	−0.08	0.09	0.34	0.46
In the past 7 days how often did you think about dying?b	−0.02	0.12	−0.03	0.97
In the past 7 days how often were you preoccupied with thoughts of dying?b	−0.01	−0.03	−0.06	0.94
In the past 7 days how often did you think about your own death?b	0.00	0.09	0.04	0.90
In the past 7 days how often were you preoccupied with thoughts of death?b	0.04	0.00	−0.01	0.90
In the past 7 days how often did you feel anxiety that you would die?b	0.00	−0.31	0.14	0.80
In the past 7 days how often did you talk to others about your own death?b	−0.14	0.13	0.04	0.74
In the past 7 days how often did you think about ending your life?b	0.25	0.20	−0.21	0.74
In the past 7 days how often did you become sad when you thought about the end of your life?b	−0.03	−0.21	0.16	0.72
In the past 7 days how often were you worried your illness would get worse?b	−0.05	0.00	0.22	0.65
In the past 7 days how often were you afraid of dying?b	0.02	−0.39	0.19	0.64
In the past 7 days how often were you afraid of the future?b	0.08	−0.22	0.25	0.63
I think about how I will die.b	−0.02	0.15	0.22	0.58
In the past 7 days to what degree did you have to push yourself to keep going?a	0.07	0.03	0.11	0.45
I feel in control of my life.b	0.35	0.14	0.02	0.40
I am concerned that I won't be able to have children.a	0.14	0.18	0.15	0.08

Note.

^aresponse options = not at all, a little bit, somewhat, quite a bit, very much

^bresponse options = never, rarely, sometimes, often, always.