Table 1.
Sociodemographic and clinical characteristics
| Characteristic | CF (N = 61) | CDMF (N = 129) | DF (N = 32) | DDMF (N = 59) |
|---|---|---|---|---|
| Gender, n (%) | ||||
| Male | 14 (23.0 %) | 26 (20.2 %) | 2 (6.3 %) | 8 (13.6 %) |
| Female | 47 (77.0 %) | 103 (79.8 %) | 30 (93.8 %) | 51 (86.4 %) |
| Age (years) | ||||
| Mean (SD) | 46.2 (10.5) | 50.4 (9.7) | 47.6 (9.5) | 51.8 (10.1) |
| Min, max | 24.0, 65.0 | 27.0, 72.0 | 27.0, 66.0 | 29.0, 72.0 |
| Ethnicity, n (%) | ||||
| Hispanic | 1 (1.6 %) | 1 (0.8 %) | 1 (3.1 %) | 2 (3.4 %) |
| Not hispanic | 58 (95.1 %) | 124 (96.1 %) | 29 (90.6 %) | 54 (91.5 %) |
| Prefer not to answer | 2 (3.3 %) | 4 (3.1 %) | 2 (6.3 %) | 3 (5.1 %) |
| Race, n (%) | ||||
| White | 53 (86.9 %) | 113 (87.6 %) | 27 (84.4 %) | 53 (89.8 %) |
| Black | 5 (8.2 %) | 8 (6.2 %) | 1 (3.1 %) | 2 (3.4 %) |
| Asian | 0 (0.0 %) | 1 (0.8 %) | 1 (3.1 %) | 0 (0.0 %) |
| Native American/Alaska Native | 0 (0.0 %) | 0 (0.0 %) | 0 (0.0 %) | 1 (1.7 %) |
| Mixed race | 3 (4.9 %) | 3 (2.3 %) | 2 (6.3 %) | 2 (3.4 %) |
| Prefer not to answer | 0 (0.0 %) | 4 (3.1 %) | 1 (3.1 %) | 1 (1.7 %) |
| Disease duration (years) | ||||
| Mean (SD) | 9.8 (7.7) | 11.0 (8.3) | 14.8 (9.5) | 13.0 (9.6) |
| Min, max | 0.3, 35.5 | 0.1, 35.9 | 2.2, 39.6 | 0.3, 48.8 |
| Disability according to patient-determined disease steps (PDDS), n (%) | ||||
| Normal | 16 (26.2 %) | 17 (13.2 %) | 8 (25.0 %) | 4 (6.8 %) |
| Mild disability | 8 (13.1 %) | 21 (16.3 %) | 4 (12.5 %) | 1 (1.7 %) |
| Moderate disability | 8 (13.1 %) | 12 (9.3 %) | 3 (9.4 %) | 10 (16.9 %) |
| Gait disability | 16 (26.2 %) | 20 (15.5 %) | 4 (12.5 %) | 12 (20.3 %) |
| Early cane | 4 (6.6 %) | 21 (16.3 %) | 2 (6.3 %) | 12 (20.3 %) |
| Late cane | 5 (8.2 %) | 21 (16.3 %) | 5 (15.6 %) | 10 (16.9 %) |
| Bilateral support | 2 (3.3 %) | 7 (5.4 %) | 4 (12.5 %) | 6 (10.2 %) |
| Wheelchair/scooter | 2 (3.3 %) | 10 (7.8 %) | 2 (6.3 %) | 4 (6.8 %) |
| During the past 4 weeks how much has your physical health interfered with your social activities?, n (%) | ||||
| None of the time | 11 (18.0 %) | 18 (14.0 %) | 3 (9.4 %) | 3 (5.1 %) |
| A little of the time | 18 (29.5 %) | 32 (24.8 %) | 9 (28.1 %) | 10 (16.9 %) |
| Some of the time | 22 (36.1 %) | 46 (35.7 %) | 7 (21.9 %) | 15 (25.4 %) |
| Most of the time | 6 (9.8 %) | 23 (17.8 %) | 9 (28.1 %) | 25 (42.4 %) |
| All of the time | 4 (6.6 %) | 10 (7.8 %) | 4 (12.5 %) | 6 (10.2 %) |
| Education level, n (%) | ||||
| Some high school | 0 (0.0 %) | 1 (0.8 %) | 0 (0.0 %) | 0 (0.0 %) |
| High school grad or GED | 5 (8.2 %) | 12 (9.3 %) | 3 (9.4 %) | 8 (13.6 %) |
| Some college | 26 (42.6 %) | 64 (49.6 %) | 11 (34.4 %) | 25 (42.4 %) |
| Undergraduate degree | 15 (24.6 %) | 36 (27.9 %) | 8 (25.0 %) | 13 (22.0 %) |
| Postgraduate degree | 15 (24.6 %) | 15 (11.6 %) | 10 (31.3 %) | 12 (20.3 %) |
| Prefer not to answer | 0 (0.0 %) | 1 (0.8 %) | 0 (0.0 %) | 1 (1.7 %) |
| Household annual income, n (%) | ||||
| Prefer not to say | 10 (16.4 %) | 30 (23.3 %) | 9 (28.1 %) | 12 (20.3 %) |
| Less than $24,999 | 10 (16.4 %) | 25 (19.4 %) | 4 (12.5 %) | 10 (16.9 %) |
| $25,000–39,999 | 8 (13.1 %) | 15 (11.6 %) | 4 (12.5 %) | 6 (10.2 %) |
| $40,000–79,999 | 16 (26.2 %) | 27 (20.9 %) | 4 (12.5 %) | 18 (30.5 %) |
| 80,000 to $119,999 | 7 (11.5 %) | 17 (13.2 %) | 5 (15.6 %) | 6 (10.2 %) |
| $120,000 or more | 10 (16.4 %) | 15 (11.6 %) | 6 (18.8 %) | 7 (11.9 %) |