Table 1.

Summary of recommendations for the creation of new diverse morphological databases

Appropriate use of ancestral categories/avoiding misuse of historic racial/ethnic constructs

1. Organize the atlas by disease rather than ancestral origin

2. Limit potential search parameters involving ancestral origin

3. Approach potential participants about being photographed for the atlas before asking them about their ancestral origin

4. Avoid “race” or “ethnicity” terminology and standardized lists of options when interviewing potential participants and reporting their responses in the published atlas. Instead, use terms and phrases such as “ancestry,” and open-ended questions about ethnic and cultural identity such as “where were your grandparents born?”

Database access and maintenance

5. Seek multinational input in organizing and maintaining the atlas

6. Involve locals in designing the consent forms for each regional site

Patient autonomy and privacy

7. Construct an interface for the database that describes its purpose, asks users to certify that their use of the resource will be consistent with its diagnostic intent, and does not allow for the downloading of participant images