Table 1.

Alternative instructions—revised

Please read the following information to your child or have your child read it:

● These faces (point to faces on screen) show how much pain or hurting someone is feeling because of their [sickle cell disease or other term you use with your child to refer to his/her disease]

● This face here (point to far left face) shows a person who doesn’t have any pain or hurting

● Each face shows more and more pain or hurting (point to second, third, fourth and fifth face)

● (Point to far right face) This face here shows a person who has the worst pain or hurting

● Now think about today and how much pain or hurting you’ve been having today because of [sickle cell disease or other term you use with your child to refer to his/her disease]

● Sometimes pain and hurting can get better or worse during the day. Think about today and when your pain or hurting was at its worst today

● Now show me the face that shows how much pain or hurting you had today when it was at its worst