Table 3.
Parents’ information needs: reasons for using information sources
| Never N (%) | Rarely N (%) | Occasionally N (%) | Pretty Often N (%) | Very Often N (%) | |
|---|---|---|---|---|---|
| To prepare for a [rheumatology/gastroenterology] visit | 44 (22.0) | 37 (18.5) | 73 (36.5) | 33 (16.5) | 13 (6.5) |
| Because you did not understand the information from the [rheumatology/gastroenterology] provider | 86 (43.0) | 69 (34.5) | 38 (19.0) | 6 (3.0) | 1 (0.5) |
| Because you wanted more information than the [rheumatology/gastroenterology] provider gave you | 26 (12.9) | 39 (19.4) | 73 (36.3) | 37 (18.4) | 26 (12.9) |
| Because you did not remember what was said during the visit about treatment with biologics | 72 (36.0) | 60 (30.0) | 51 (25.5) | 14 (7.0) | 3 (1.5) |
| Because you wanted to know about other people’s experiences being treated with biologics | 26 (13.0) | 24 (12.0) | 70 (35.0) | 50 (25.0) | 30 (15.0) |
| To increase your confidence in your decision | 18 (9.0) | 19 (9.5) | 67 (33.5) | 50 (25.0) | 46 (23.0) |