Categories Used in the Data Extraction Form (Selected Items)
Fields Used in RedCap Data Extraction Form | Response Boxes |
---|---|
Country where the study took place | |
Participants (HCP specialty) | Oncologists Surgeons Hematologists Doctors (not specified) Radiation oncologists GYN Nurses Other |
Definition of young patient (age range) | |
Study design | Quantitative Qualitative Mixed-methods |
Qualitative research methods | Interviews Questionnaires Observations Focus groups Medical chart review Other |
Quantitative research methods | Online surveys Telephone surveys Face-to-face surveys Mailed surveys Clinical measures Other |
Reasons for not communicating information or referring patient |
Uncertain prognosis Clinical features of the cancer Type of treatment Patient is too old Patient is too young Patient marital or family characteristics Patient’s Fatherhood or motherhood goals Patient’s positive outlook Not part of the HCP’s professional role FPT would delay treatment Lack of HCP knowledge about FP options Attitude (low priority) Attitude (willingness to discuss) Financial issues/too expensive Not covered by insurance Lack of information on where to refer patient Difficulty explaining information Embarrassment or uncomfortable discussing Sexual orientation Patient ethnicity/cultural beliefs Patient information overload Fertility will be restored Lack of guidelines Ethical issues (what happens if the patient dies?) Beliefs about the efficacy of FPT Other patient-related factors Institutional/structural factors Other |
Reasons why HCPs felt patient would not choose a FPT | Patient’s views on their family Patient’s outlook on life Financial issues Ethnicity/cultural beliefs Uncertain prognosis Sexual orientation Other |
Tools that help HCPs in disclosure and/or referral | Fertility expert in MDTs Information or decision aid for patients Clear referral guidelines Information on FP part of routine practice Information on FP is provided multiple times (not just at diagnosis) Other |
Percentage of HCPs that discuss FP with patient | |
Type of HCP knowledge assessed | Practice guidelines Fertility preservation procedures Fertility clinics Referral processes Resources for patients (education, financial) Where information can be found Risk of infertility produced by the treatment Other |
Information sources for HCPs | Scientific literature Professional guidelines Discussions with fertility specialists Own clinical experience Continuing education programs Patient education materials Other |
What does current practice entail? | Provision of oral information Provision of written information Patient-nurse conversations Patient-doctor conversations Discussion in MDT meetings Request of input from fertility specialists Use of guidelines FP not discussed Other |
Recommendations for changes in practice/guidelines | |
Limitation identified in article |