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. Author manuscript; available in PMC: 2018 Jan 1.
Published in final edited form as: Psychooncology. 2016 Feb 18;26(1):4–14. doi: 10.1002/pon.4092

Categories Used in the Data Extraction Form (Selected Items)

Fields Used in RedCap Data Extraction Form Response Boxes
Country where the study took place
Participants (HCP specialty) Oncologists
Surgeons
Hematologists
Doctors (not specified)
Radiation oncologists
GYN
Nurses
Other
Definition of young patient (age range)
Study design Quantitative
Qualitative
Mixed-methods
Qualitative research methods Interviews
Questionnaires
Observations
Focus groups
Medical chart review
Other
Quantitative research methods Online surveys
Telephone surveys
Face-to-face surveys
Mailed surveys
Clinical measures
Other
Reasons for not communicating information or referring
patient
Uncertain prognosis
Clinical features of the cancer
Type of treatment
Patient is too old
Patient is too young
Patient marital or family characteristics
Patient’s Fatherhood or motherhood goals
Patient’s positive outlook
Not part of the HCP’s professional role
FPT would delay treatment
Lack of HCP knowledge about FP options
Attitude (low priority)
Attitude (willingness to discuss)
Financial issues/too expensive
Not covered by insurance
Lack of information on where to refer patient
Difficulty explaining information
Embarrassment or uncomfortable discussing
Sexual orientation
Patient ethnicity/cultural beliefs
Patient information overload
Fertility will be restored
Lack of guidelines
Ethical issues (what happens if the patient
dies?)
Beliefs about the efficacy of FPT
Other patient-related factors
Institutional/structural factors
Other
Reasons why HCPs felt patient would not choose a FPT Patient’s views on their family
Patient’s outlook on life
Financial issues
Ethnicity/cultural beliefs
Uncertain prognosis
Sexual orientation
Other
Tools that help HCPs in disclosure and/or referral Fertility expert in MDTs
Information or decision aid for patients
Clear referral guidelines
Information on FP part of routine practice
Information on FP is provided multiple times
(not just at diagnosis)
Other
Percentage of HCPs that discuss FP with patient
Type of HCP knowledge assessed Practice guidelines
Fertility preservation procedures
Fertility clinics
Referral processes
Resources for patients (education, financial)
Where information can be found
Risk of infertility produced by the treatment
Other
Information sources for HCPs Scientific literature
Professional guidelines
Discussions with fertility specialists
Own clinical experience
Continuing education programs
Patient education materials
Other
What does current practice entail? Provision of oral information
Provision of written information
Patient-nurse conversations
Patient-doctor conversations
Discussion in MDT meetings
Request of input from fertility specialists
Use of guidelines
FP not discussed
Other
Recommendations for changes in practice/guidelines
Limitation identified in article