Table 1.
Existence of formal transition protocols at the adolescent clinics (average age of transition) |
Strategies to prepare adolescents for transition at the adolescent clinics |
Methods used at the adolescent clinics to facilitate adolescents’ connection to adult clinics |
Process for transition outcome evaluation at the adolescent clinics |
|
---|---|---|---|---|
Sites where transition requires new providers and a new clinical space | ||||
Site T | No formal protocol (25 years old) | Informal discussions to prepare youth for transition |
Informal, follow up for 2 visits. Case manager will maintain contact with adolescents post transition |
|
Site S | Formal protocol - in revision Based on a protocol that allergy/ immunology uses with adolescents (24/25 years old) |
Provides certificates to celebrate transition |
None | |
Site R | Formal protocol - in revision (24 years old; cannot admit after 21) |
Social worker takes youth to appointment |
Informal – staff try to maintain contact even after youth transitions to adult clinic |
|
Site Q | No formal protocol (24 years old) | Track for 3–6 months | ||
Site O | Transition process; no formal protocol (21 years old; but can see older patients) |
Informal – social worker tries maintain contact for up to one year |
||
Site J | No formal protocol (25 years old) | Informal discussions to prepare youth for transition |
Informal – staff will keep contact with youth |
|
Site G | Formal protocol (24 years old) | Informal - trying to standardize a year follow-up (difficult with different adult sites) |
||
Sites whose primary referral site is in the same medical system | ||||
Site N | Formal protocol; all staff know of plan but it is not written up formally (25 years old; do allow youth to come back) |
“Moving Up” ceremony to celebrate transition |
Informal - follow-up for 2 visits at other place (easier if stay in system) Let them come back even at 25 |
|
Site I | Formal protocol (25th birthday) | Staff takes youth over to meet adult case manager |
Same system but no consent (or funds) to follow |
|
Sites that allow adolescents to stay in the same clinical space (but who may have new providers) | ||||
Site P | Formal protocol – solidifying it (24–25 years old) |
In same clinic – introduce to adult provider(s) |
Tracks for 6 months | |
Site K | No formal protocol (24 years old) |
Informal discussions to prepare youth for transition |
In same clinic – introduce to adult provider(s) |
Informal - get adult clinics’ schedule (can see who’s going); case manager still calls |
Site H | No formal protocol (~23/24 years old) |
In same clinic – introduce to adult provider(s) |
In same clinic so easy (medical records) |