Table 5.

Barriers to Receiving Information

Barriers to CG Seeking Information [n = 59]*	n (%)
CG did not initially acknowledge symptoms as a disease (esp. behavioral)	24 (40.7 %)
CG did not know the diagnosis or what terms to search for	11 (18.6 %)
CG did not know there would be information available (esp. behavioral)	10 (16.9 %)
CG too busy or overwhelmed to seek information	6 (10.2 %)
CG in denial or avoiding stigma of disease	4 (6.8 %)
CG didn’t think of self as “caregiver”	3 (5.1 %)
CG already familiar professionally	1 (1.7 %)
Barriers to Information Sources, [n = 38]	n (%)
Insufficient information provided by PCP	17 (44.7 %)
PCP too busy to provide information	5 (13.2 %)
Internet search frustrating	16 (42.1 %)

CG caregiver, PCP primary care provider

*some CG reported more than one barrier