Table 4.
Final interview guide
| In the inner circle place those who are most important to you in terms of your health, in the next circle place those who are important but not quite as important as those in the inner circle, in the outer circle places those who are important but not as important as those in the other circles |
| Highlight in the same colour the network members who know each other |
| How far away do they live/work (write next to name): |
| 1a: co‐habiting |
| 1b: short walk/drive away |
| 1c: lives up to 1 h away |
| 1d: over 1 h away |
| How much contact do you have with them (write next to name): |
| 2a: daily |
| 2b: at least once a week |
| 2c: at least once a month |
| 2d: every couple of months |
| 2e: less often than every couple of months |
| Who is most important in the network for you? Why? |
| Compare the different network members and what they mean/their role in management |
| Who among the people in your diagram do you help? Why? |
| Was there anyone who was more important but is less so now? |
| Is there anyone who was less important but is more important now? Why? |
| Are there people who are making it difficult in some ways? some people have said that there are certain people that make it harder for them to manage their condition, is there anyone like that in your diagram? |
| Who do you socialize with? Are their people who are not on here who you see regularly? Would you talk to them about your health? |
| Out of these who would you talk to about health issues/ask for help? Is this different to the people you spend time with or talk to generally? |
| Health‐care professionals: Did they mention or not? How do you feel about your relationship? How do you prioritize their role in your health care? |
| Who do you talk to about your condition? How often? Has this changed over time? How is this different to the people that you are close to or spend a lot of time with generally do you talk to them about your health? If no, why? |
| What is your main condition priority at the moment? How has your condition(s) changed over the last year? |
| What things have stayed the same, got better or changed for you over the last X months |
| Have you done anything differently about your condition over the last x months? |
| Have you changed the way you think about your condition and in what way? |
| New things you have done: Have you talked to anyone or made contact with any service or local activity over the last year? |
| Have you stopped seeing anyone or doing things you previously did at work home or locally? If so, what are the reasons? |
| More broadly how has the area changed? What is the most important thing in the area that you use and things that you do daily activities? How have these changed? Has this been effected by your health? |
| Tell me about your contact with primary care over the last few months. For your chronic condition, for other things? Has it changed over the last year? If so, how is it different from before? Has this impacted on how you view your condition and support from the service and elsewhere? |
| How relevant or important has this change been compared to other changes for you in living with your condition over the last year? |
| Have you noticed any differences in the priorities of the GP or nurse during the consultations? |
| How often do you see the GP or nurse in the last 12 months? |
| In general has anything changed for you in the way in which you use or talk to people in primary care about your chronic condition? |
| Have you noticed any differences in the way that primary care responds to you or your chronic condition and generally? |
| If have more than one condition – Did you focus on one condition over the other during your contact with services? Thinking about who you have spoken to about your health, would you talk to them about both of your conditions? Is there any difference in which/what you would talk about? |
| Are you involved with any voluntary organizations? Have you joined anything locally over the last year? Do you do anything differently in the way in which you talk to people about your illness or what you do on a daily basis including in the work place? |
| What has been the most significant change for you over the last year? |