Family‐focused health network (n = 17) |
Family members outnumbered friends and health‐care professionals |
Predominantly multiple family members. For some participants, their GP was also central |
Multiple family members had significant roles in supporting the individual |
Health‐care professionals were important, but family members were normally consulted first |
Friends were less important in management. Were a source of potential support |
Friend‐focused health network (n = 4) |
Friends outnumbered family and health‐care professionals |
Friends, family and GP |
Important for instrumental support for younger participants, in particular parents and siblings. For older participants, family was less relevant because of emotional and physical distance. Yet these networks were characterized by a physical, instrumental or emotional absence of family support |
GP has a significant role but other health‐care professionals do not |
Friends are important in providing support. Differs to family focused health network as friends are a central source of support |
Health‐care professional‐focused health network (n = 5) |
Health‐care professionals outnumbered other network members |
Multiple health‐care professionals. Few family members identified |
Few family members identified. Primarily partner |
Very significant role. The participants referred to multiple health‐care providers including GPs, nurses and specialists |
Friends were not identified as significant |