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. 2015 Feb 17;19(2):309–321. doi: 10.1111/hex.12352

Table 1.

Advantages and disadvantages of online health‐related communities2, 4, 8, 9, 10, 17, 38

Advantages Disadvantages
Absence of geographical barriers Inequity of access and creation of a ‘digital divide’
Absence of temporal barriers Difficult to detect conversational nuances as non‐verbal elements of communication are missing. Consequently the meaning of messages can be misinterpreted
Anonymity means that participants do not have to worry about their appearance or socio‐demographical characteristics affecting the responses of others Anonymity and the virtual nature of the group can lower the threshold of acceptable behaviour leading to socially inappropriate and aggressive messages
Facilitates open discussion of sensitive issues due to anonymity and disembodied nature of communication As there is a lack of control of information exchange, participants can be confronted with the negative aspects of different conditions and have to contend with negative/pessimistic participants
Participants can control their level of participation and play a passive or an active role There is the potential for the exchange of inaccurate and potentially dangerous information
Access to an increased number and diversity of perspectives and resources Asynchronicity means that there is a time lag before participants receive a response
Useful for people with rare conditions and for disabled people Potentially addictive and may lead to a decrease in face‐to‐face socialization
As a text‐based medium, the process of writing about feelings may be therapeutic in itself
May provide insight into the experiences of those with long‐term conditions for health professionals and relatives
Financial costs said to be ‘reasonable’ for stakeholders
Enable exchange of information about particular conditions and treatments