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Table 2.

Types of information wanted before deciding to have a diagnostic mammogram

Information Numbers of times mentioned
Unprompted Prompted Total
Doctor's opinion about the lump
 What is the lump? 2 6 8
 Is a mammogram necessary? Why? 3 1 4
 What is the possible cause of the lump? 2 2
Potential benefits
 What benefit will a mammogram be? 3 3
Potential risks
 What are the dangers of having a mammogram? 5 8 13
 Will I be exposed to radiation? 4 4
 Will the mammogram affect the lump? 1 1
 If it's a cyst, will it burst? 1 1
Possible side‐effects
 Will the mammogram hurt? 9 10 19
 What is the chance of each side‐effect? 1 1
 Will I feel discomfort? 1 1
Accuracy
 How accurate is a mammogram? 7 13 20
 What is the chance it will miss a cancer? 1 1
 Will the results be definitive enough for action to be taken? 1 1
Alternative tests
 What other tests can I have? 4 4
 Could I have an ultrasound first? 2 2
 Will I need to have other tests after? 2 2
 Is a biopsy better than a mammogram 1 1
 Should I have a biopsy at the same time? 1 1
 Is this the best test to have? 1 1
Practical issues
 How is a mammogram actually done? 7 3 10
 How long will it take? 3 4 7
 Where do I go to have it? 1 1 2
 What do I need to take with me? 1 1 2
 Who conducts the test? 1 1
 What shouldn't I wear? 1 1
 Can I wear talcum powder/deodorant? 1 1
 Will I need to fast? 1 1
 How soon can I have it done? 1 1
 What different machines can be used? 1 1
Possible outcomes
 What are the possible outcomes? 5 5
 What is the worst possible outcome? 2 2
 What will happen if I don't have it? 1 1
What happens if it's cancer?
 What are the treatment options? 4 4
 Would chemotherapy be required? 2 2
 What would the prognosis be? 2 2
 What is the treatment success rate? 2 2
 How far has the cancer spread? 1 1
 Will I be able to keep working? 1 1
 How long will I need to convalesce? 1 1
 Would there be support (e.g. home help) available? 1 1
Results
 How long will it take to get the result? 3 3
 How do they determine if anything is wrong? 2 2
 Who examines the mammogram? 1 1
 How do I find out if anything is wrong? 1 1
 What happens once the result is known? 1 1
Cost
Is there a Medicare rebate? 1 1