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Table 2.

Patients’ problems prioritized during the focus groups

Rank Problem Score
 1 Side‐effects of medication 27
 2 Hypersensitivity for all kinds of substances, such as smoke, perfumes, dust, damp, etc. 23
 3 Insufficient coaching and follow‐up with drug use by professionals 11
 4 (Obscurity of) long‐term side‐effects of medication 10
 5 Obscurity of causes of disease or individual attacks  9
 6 Interference with social life  9
 7 Co‐morbidity  7
 8 Inadequate information and uncertainty on drug use  7
 9 Fatigue  6
10 Lack of knowledge among general practitioners and pharmacists  6
11 Inadequate collaboration of health‐care professionals  4
12 High costs for medication, aids and house adaptation  4
13 Non‐understanding by social environment  3
14 Non‐understanding at school and work  3
15 Feelings of grief and frustration about physical constraints and social isolation  3
16 Little attention for alternative therapies in health‐care  3
17 Lack of patients’ empowerment  2
18 Inadequate collaboration between regular and alternative medicine  2
19 Non‐understanding by professionals  2
20 Inconvenience of drug use  2

The score refers to the number of ‘urgency points’ (paperclips) allocated to the problem by the participants.