The clinical circumstance |
Case examples |
Surgical treatment choices for patients with new diagnosis of breast cancer; leg amputation vs. medical treatment or revascularization in a patient with diabetes and ischaemic limb pain and ulcers |
Lifestyle and pharmacological treatment choices for patients with new diagnosis of uncomplicated type 2 diabetes; living with the sequelae of successful cancer treatments |
Rhythm (natural history) |
Accelerated deterioration (local tumour growth, pain, bleeding, infection) with hyperacute complications (brain metastases and seizures) |
Chronic progression (fatigue, pain) interrupted by acute complications (stroke, vision loss, amputation) |
Patient's role |
Sick role is acceptable over a brief period |
Patients may shift the disease to the background to live their lives and shift it to the foreground prompted by symptoms, complications or impending office visits |
Decision making |
Decision‐making setting |
At health care facility |
At patient's habitual personal and social space (bathroom, dining room, workplace) |
Opportunity to make the decision |
One narrow window of opportunity to consider the choices |
Multiple windows of opportunity, choices can be revisited often |
Decision reversibility |
Irreversible choice |
Reversible choices |
Nature of the choices |
Characteristics of treatment |
Inflexible, en‐block, or protocolized treatments |
Continuously tailored and responsive to disease progression |
Specialized knowledge for treatment administration |
Highly technical and unfamiliar choices; administration requires special expertise |
Familiar choices of apparent low technical complexity (eat less fat; take this pill); administration requires some training |
Treatment/monitoring |
Intermittent treatment, ongoing monitoring |
Ongoing treatment and monitoring |
Patient role during treatment administration |
Passive (treatment is inflicted on the patient) |
Active (patient controls treatment administration) |
Role of compliance/ adherence/concordance |
Mostly limited to showing up to appointments – most treatments administered by health professionals at facility |
Crucial since patients self‐administer treatments and choose their lifestyle |
Social impact of treatment |
Limited to economic/social burden of caring for patient for a limited time after treatment |
Lifestyle intervention impacts the family; ongoing care needed lifelong |
Characteristics of the outcomes |
Type of outcomes |
Dichotomous, discrete
Mostly vivid, explicit, urgent |
Continuous, progressive
Mostly insidious; some less vivid, implicit (atherosclerosis, kidney damage) |
Connotation of the outcomes |
Frightening, fatal |
Less ominous |
Timing of outcomes |
Short term |
Long term |
Improvement |
Final (resolution of cancer; elimination of ischaemic pain) |
Periodic (symptom control for a period) |
Cure |
Live without the illness |
Living acceptably with the illness |