Table 4.

 Feedback from participants

Statement on feedback form	% of participants who ‘agreed’
Young women with breast cancer have more difficulties than do older women accessing information relevant to their age and life stage	96
Young women have difficulties finding age‐appropriate information concerning how to talk about cancer to their children	86
Young women with breast cancer have difficulties accessing peer and professional support	86
Young women find it difficult to access age‐appropriate emotional support for their children	82
The lack of help with child care is a major problem for young mothers with breast cancer	86
The cancer care system does not sufficiently attend to the specific needs of pre‐menopausal women in relation to diagnostic procedures, clinical trials and available treatments	86
The lack of regular follow‐up to young women with breast cancer is a major concern	55
Young women struggle with issues related to their body image (e.g. physical appearance, sexuality) following surgery and/or treatment	96
Inadequate financial programmes create a major burden for young women with breast cancer	96
The cancer care system should provide two types of information to young women with breast cancer: (i) information about the specific issues faced by young women; and (ii) standardized generic information about issues faced by any woman with breast cancer	100
Systems need to be developed to better help newly diagnosed young women with breast cancer to navigate the health‐care system	91
The cancer care systems needs to develop better diagnostic techniques and to more fully understand the effects of adjuvant therapy on young women with breast cancer	100
Systems need to be put in place to ensure long‐term follow‐up of young women with breast cancer	96
Systems need to be put in place to ease the financial burden for young women with breast cancer	100