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Table 1.

 Factors affecting patients’ willingness to participate in improving the safety of their own health care

Factor Evidence/relevant information
1. Patient‐related  Knowledge/beliefs The public is concerned about the risk of medical errors if hospitalised, 12, 13 75%feel health care is only moderately safe 12, 13 and 49%feel preventable medical errors are madesomewhat oftenorvery often’ 14
Patients understand the risk of medication errors and hospital acquired infections 15, 16
59%of the public feel that patientsaresomewhat oftenorvery oftenpartially responsible for errors in their own care 14
Patients feel they have a role in reducing their susceptibility to patient safety incidents, including medication errors 16
 Demographic features Younger patients generally want more involvement than older patients 18 , 19 , 20
Females want more involvement than males 18
Highly educated patients opt for a more active role than their less academic peers 18 , 19 , 20
 Emotions and coping style Patients’ experiences with their illness can trigger negative emotions (e.g. anxiety). 25
Negative emotions may heighten patients’ perceptions of vulnerability to negative life events, 26 , 27 which may catalyse their participation in safety‐related behaviours.
Patients that use more active coping styles express greater preferences for involvement 28
2. Illness‐related  Stage/severity of illness Some studies show patients with minor complaints are more likely to prefer an active role than patients with severe disease 18 , 29 but opposing findings show patients with serious illness/whose illness is further progressed, have higher preference for involvement 30
 Illness symptoms, treatmentplan and patients’ health outcomes Patients’ preferences for involvement may change over time dependent on the symptoms of the illness 31
Preference for involvement may be associated with illness symptoms and how these affect the functionality of the patient
Preference for involvement may be associated with the type of treatment plan for the illness and how much opportunity for involvement this allows
Preference for involvement may be associated with the likely impact that patient involvement will have on the patients’health outcomes
 Prior experience
 • Illness Patients’ experience of illness is associated with higher preference for involvement for treatment of that illness. 32 Experience of a patient safety incident may have a similar effect in terms of an increased preference for involvement in safety‐related behaviours
 • Patient safety incidents National and international organizations have been founded by victims of patient safety incidents (http://www.mrsasupport.co.uk; http://www.patientsafety.org)
3. Health care professional‐related  Knowledge/beliefs 58% physicians felt that patients were eithervery oftenorsomewhat often’ partially responsible for medical errors in their care. 14
 Interactions with patients Clinicians generally express positive views on patient involvement 34
Positive interactions with health professionals can encourage patient participation; 35 , 36
Negative interactions can act as an inhibitor 37
 HCP’s professional role 100%patients were willing to ask a nurse whether they have washed their hands, but only 35%were willing to ask a doctor 15
4. Health care setting‐related  Health care setting Patients have more difficulty communicating with hospital staff than their GP, 35 , 38 so may be less willing to engage in safety‐related behaviours which require direct communication with staff in the hospital setting.
Emergency patients are typically unsure what is wrong with them so may be less willing to be involved than patients receiving ambulatory Care 39
5. Task‐related  Challenge to HCPs It is likely that patients will be more willing to be involved in safety‐related behaviours that do not challenge the health care professionals’ clinical abilities.
 Medical knowledge  required Patients prefer to be more involved in those aspects of their health care that do not require medical knowledge. 40

Note – For factors/relevant information: Bold face type indicates direct evidence of effect of factor on patients’ willingness to be involved in safety; Normal type indicates possible effect/indirect evidence and relevant observations drawn from TDM literature and other sources; Italic type indicates suggestive factors that could affect patients’ willingness to participate in safety.