Table Box 2.

Preliminary topics for discussion – original interview guide

Services experienced during diagnosis, treatment and follow‐up;

Examples of services that have been particularly flexible in their ways of working and/or responsive to preferences, needs and requests;

Examples of services that have been inflexible and not responsive to preferences, needs and requests;

Ways in which other services could learn from the flexible/responsive service(s) described;

Issues/situations that prompt a need for flexibility and responsiveness on the part of services;

Ease/difficulty of expressing preferences and needs to health and social care professionals;

Involvement in schemes or organizations designed to increase patient/carer participation and self‐determination;

Innovations that might help patients/carers express their preferences and needs and/or make services more flexible and responsive;

Any other relevant issues participants want to discuss.