Table 1.
Content Area | Definition |
---|---|
Bereavement support | Related to support and services provided to family after death of patient |
Caregiver support | Related to support and services available or provided to caregiver |
Environment | Related to room, noise, comfort of facility |
Financial needs | Related to patient’s financial needs, health care costs, and funeral planning |
Information and care planning |
Related to advance care planning, communication, and decision-making between patient, family & providers, discussing goals/preferences for care, information related to informal care for patient at home |
Overall experience | General assessments of care received; overall experience |
Personal care | Related to the quality of personal care provided in facility or home (bathing, eating, and so on) |
Provider care | Related to quality of and satisfaction with care given by specified provider (doctor, nurse, social worker, staff, and so on) |
Psychosocial care | Related to emotional well-being, social support, social needs, and whole-person needs of patient |
Quality of death | Related to experience of care received immediately before dying for patient/family (e.g., “During the final hours of your family member’s life . ”) |
Responsiveness and timing | Related to responsiveness to needs of patient/caregiver, including availability of hospice staff and timing of hospice referral |
Spiritual, religious, and existential care |
Related to religious aspects of care and/or patients’ spiritual/existential needs and well-being |
Symptom management | Related to experience and management of symptoms such as pain and shortness of breath |
Other | Demographic information about patient or type of facility (unrelated to satisfaction or experience with care) |