Table 2.
Content Areas of Available Surveys
| Frequency of Unique Abstracted Survey Questions by Content Area |
||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Survey Name | # of Studies |
Citation Number a |
Total Unique Abstracted Questions |
Total Domains Covered |
Information and Care Planning |
Provider Care |
Symptom Management |
Overall Experience |
Spiritual, Religious, and Existential |
Psychosocial Care |
Caregiver Support |
Responsiveness & Timing |
Other | Personal Care |
Bereavement Support |
Quality of Death |
Environment | Financial Needs |
| Family Satisfaction with Advanced Cancer Care |
10 |
4, 14, 31, 45, 46, 51, 52, 56, 70, 71 |
30 | 6 | 14 | 9 | 1 | 1 | 4 | 1 | ||||||||
| Family Evaluation of Hospice Care |
8 |
19, 57, 68, 69, 72, 81, 82, 87 |
56 | 12 | 18 | 3 | 10 | 3 | 4 | 5 | 5 | 1 | 2 | 1 | 2 | 2 | ||
| After-death Bereaved Family Member Interview |
9 |
5, 8, 9, 18, 32, 36, 65, 73, 80 |
74 | 12 | 30 | 2 | 14 | 2 | 6 | 6 | 3 | 1 | 1 | 5 | 1 | 3 | ||
| Quality of Dying and Death |
6 |
35, 42, 49, 62, 63, 65 |
48 | 9 | 4 | 6 | 15 | 12 | 3 | 1 | 4 | 3 | ||||||
| Family Assessment of Treatment of End-of- Life |
4 | 15, 28, 53, 75 | 58 | 11 | 19 | 4 | 11 | 4 | 3 | 2 | 4 | 3 | 3 | 1 | 4 | |||
| Views of Informal Carers Evaluation of Services |
4 | 3, 10, 20, 59 | 45 | 6 | 11 | 6 | 25 | 1 | 1 | 1 | ||||||||
| End of Life in Dementia– Satisfaction with Care, Symptom Management, & Comfort Assessment in Dying |
3 | 18, 44, 84 | 41 | 7 | 4 | 1 | 27 | 3 | 4 | 1 | 1 | |||||||
| Quality of End-of-Life Care and Satisfaction with Treatment |
3 | 7, 78, 79 | 47 | 5 | 14 | 3 | 1 | 18 | 11 | |||||||||
| Family Satisfaction in the ICU |
3 | 21, 34, 49 | 25 | 7 | 11 | 2 | 5 | 1 | 2 | 1 | 3 | |||||||
| Regional Study of Care for the Dying |
3 | 24, 25, 26 | 4 | 1 | 4 | |||||||||||||
| End of Life Care in Acute Care Hospitals (Caregiver and Patient Versions) |
2 | 39, 40 | 43 | 8 | 20 | 7 | 1 | 5 | 7 | 1 | 1 | 1 | ||||||
| Satisfaction scale for Family members receiving Inpatient Palliative Care |
2 | 60, 61 | 57 | 12 | 11 | 8 | 3 | 2 | 2 | 3 | 6 | 6 | 1 | 3 | 8 | 4 | ||
| Primary Caregiver Satisfaction with Hospice Social Services |
1 | 6 | 12 | 7 | 3 | 1 | 1 | 2 | 2 | 2 | 1 | |||||||
| Client-centered care questionnaire |
1 | 12 | 15 | 1 | 15 | |||||||||||||
| Reid-Gun dlach Satisfaction with Services |
1 | 13 | 36 | 4 | 27 | 7 | 1 | 1 | ||||||||||
| Client Satisfaction Survey | 1 | 13 | 13 | 3 | 4 | 1 | 8 | |||||||||||
| Quality of dying in long- term care |
1 | 18 | 9 | 4 | 3 | 1 | 3 | 2 | ||||||||||
| Primary Care Assessment Survey |
1 | 29 | 8 | 5 | 3 | 2 | 1 | 1 | 1 | |||||||||
| Canadian Health Care Evaluation Project |
1 | 38 | 73 | 11 | 20 | 13 | 2 | 7 | 10 | 7 | 6 | 2 | 2 | 2 | 2 | |||
| Family Satisfaction with Care Questionnaire |
1 | 43 | 36 | 9 | 18 | 2 | 3 | 2 | 2 | 2 | 3 | 2 | 2 | |||||
| Admission and follow-up patient satisfaction questionnaire |
1 | 83 | 15 | 4 | 4 | 6 | 1 | 4 | ||||||||||
| Care Evaluation Scale | 1 | 86 | 5 | 3 | 2 | 2 | 1 | |||||||||||
| Family Perception of Care Scale |
1 | 85 | 27 | 8 | 10 | 2 | 1 | 1 | 4 | 4 | 3 | 2 | ||||||
| Caregiver Satisfaction survey (Steele 2002) |
1 | 76 | 15 | 7 | 3 | 2 | 5 | 1 | 1 | 2 | 1 | |||||||
| Good Death Inventory (Miyashita, 2008b) |
1 | 88 | 54 | 9 | 4 | 7 | 4 | 14 | 11 | 3 | 7 | 3 | 1 | |||||
| Adams (2009) survey | 1 | 1 | 1 | 1 | 1 | |||||||||||||
| Addington-Hall (1995) survey |
1 | 2 | 23 | 4 | 8 | 1 | 10 | 4 | ||||||||||
| Billings (1999) survey | 1 | 11 | 36 | 7 | 14 | 1 | 3 | 5 | 1 | 10 | 2 | |||||||
| Casarett (2003) survey | 1 | 16 | 7 | 3 | 4 | 2 | 1 | |||||||||||
| de Vogel-Voogt (2007) survey |
1 | 22 | 8 | 2 | 2 | 7 | 1 | |||||||||||
| Demmer (2002) survey | 1 | 23 | 3 | 4 | 1 | 2 | ||||||||||||
| Field (1998) survey | 1 | 27 | 22 | 6 | 3 | 9 | 1 | 1 | 6 | 2 | ||||||||
| Flock (2011) survey | 1 | 30 | 25 | 6 | 8 | 4 | 10 | 1 | 1 | 1 | ||||||||
| Grande (2009) survey | 1 | 33 | 8 | 5 | 3 | 2 | 1 | 1 | 1 | |||||||||
| Hanson (2008) survey | 1 | 37 | 16 | 4 | 1 | 9 | 1 | 5 | ||||||||||
| Patient Judgment of Hospice Quality (Heyland, 2003) |
1 | 41 | 4 | 3 | 1 | 1 | 2 | |||||||||||
| Lecouturier (1999) survey |
1 | 47 | 19 | 5 | 7 | 6 | 4 | 1 | 1 | |||||||||
| Ledeboer (2008) survey | 1 | 48 | 10 | 5 | 4 | 1 | 3 | 1 | 1 | |||||||||
| Marco (2005) survey | 1 | 54 | 10 | 8 | 2 | 2 | 1 | 1 | 1 | 1 | 1 | 1 | ||||||
| Merrouche (1996) survey | 1 | 55 | 12 | 7 | 2 | 3 | 1 | 1 | 1 | 1 | 2 | 1 | ||||||
| Nolen-Hoeksema (2000) survey |
1 | 64 | 4 | 2 | 1 | 3 | ||||||||||||
| Norris (2007) survey | 1 | 65 | 14 | 4 | 8 | 2 | 2 | 2 | ||||||||||
| O’Mahony (2005) survey | 1 | 66 | 21 | 8 | 7 | 1 | 3 | 3 | 1 | 3 | 1 | 2 | ||||||
| Shinjo (2010) survey | 1 | 74 | 37 | 8 | 14 | 1 | 2 | 6 | 6 | 5 | 1 | 2 | ||||||
| Patient satisfaction survey (Steele 2002) |
1 | 76 | 20 | 9 | 2 | 3 | 5 | 2 | 1 | 1 | 4 | 1 | 1 | |||||
| Satisfaction with day hospices by caregivers (Miyashita 2008) |
1 | 58 | 19 | 8 | 5 | 2 | 1 | 4 | 4 | 1 | 1 | 1 | ||||||
| Family Perception of Physician– Family Caregiver Communication |
other source |
7 | 1 | 7 | ||||||||||||||
| Hospice Report Card | Other source |
14 | 7 | 2 | 1 | 3 | 2 | 1 | 4 | 1 | ||||||||
| National Association of Home Care and Hospice- Hospice Bereavement Survey |
Other source |
15 | 4 | 1 | 1 | 5 | 8 | |||||||||||
| Palliative Care Outcomes Scale |
Other source |
12 | 5 | 1 | 6 | 3 | 1 | 1 | ||||||||||
| Press-Ganey Hospice Survey |
Other source |
43 | 8 | 5 | 11 | 2 | 3 | 3 | 4 | 13 | 1 | |||||||
| Total Number of 51 surveys |
1256 | 45 | 35 | 30 | 28 | 26 | 23 | 20 | 18 | 16 | 16 | 13 | 12 | 11 | 11 | |||
a
Citation numbers correspond to citations in the Appendix, available at jpsmjournal.com.