1.1 Perceived discrimination |
In the interviews, the patients talked about their experiences of being rejected and discriminated against by their families, friends, other patients, colleagues, supervisors and neighbors |
Participant 1: “When the cleaner gave back my patient robes, she wore gloves and a face mask, and washed her hands with soap several times. This is discriminating against and detesting me, isn’t it?”
|
Participant 2: “Because my kids are studying abroad, the company arranged for a colleague to take care of me. But I feel he is afraid of me and always tries to avoid me. Once I saw him secretly asking the head nurse whether the disease was infectious”
|
Participant 10: “The patient sharing the room with me had gastric carcinoma. I was coughing. He thought my disease was contagious and tried to avoid me. Last time, his granddaughter came to see him. He did not let her enter the room. Later, I underwent chemotherapy with the side effects of nausea and vomiting. He felt uncomfortable and asked to be transferred to another room”
|
1.2 Social isolation and exclusion |
In the process of interacting with others, some of the participants reported feeling excluded, often limiting their social activities |
Participant 1: “I won’t go there next time if they treat me badly. During the chemotherapy a lot of hair has fallen out and I don’t feel well. I hardly go out”
|
Participant 11: “I feel I am isolated from the rest of the world”
|
Participant 13: “I feel I’m not as good as others because I have lung cancer. Sometimes I feel they exclude me”
|