Group #1 |
Disclosing for medical benefit |
This group consisted of ten participants; three gHCPs, and seven lab scientists. They were: |
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• In favour of disclosing findings which could be of medical benefit for the born child's proximate or future health, and for her/his parents/other family members. |
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• Against disclosing findings with an unknown, or uncertain medical significance, or with known clinical significance but no management. |
Group #2 |
Disclosing a wide‐range of findings |
This group consisted of ten participants; four gHCPs, three lab scientists, and three fetal medicine experts. They were: |
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• In favour of disclosing findings with definite or potential clinical significance, for either the present, or future pregnancies; and for both childhood and adult‐onset conditions. |
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• In favour of disclosing findings with uncertain clinical significance |
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• Against giving parents a choice as to what findings are disclosed |
Group #3 |
Giving parents an active role in deciding what information to receive |
This group consisted of ten participants, the majority being gHCPs (eight); one lab‐scientist; and one fetal medicine expert. |
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The main issue which distinguished this viewpoint from the others was the emphasis given to parents' role in deciding whether or not they wish to be told of findings with uncertain clinical significance and of adult‐onset conditions. |
Group #4 |
A panel of experts or national guidelines to determine what findings are disclosed |
This group consisted of seven participants: three gHCPs; three fetal medicine experts; and one lab scientist. They were: |
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• In favor of a panel of experts and national guidelines to determine which findings are disclosed. |
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• Not supportive of allowing parents to choose what information they wish to receive. |
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• Less supportive of allowing individual clinicians to decide what information to disclose. |