Table 1.
1 st author; year | Sample (N); patients population |
Reliability alpha (α) | Consequences of caregiving |
Patient’s dependence |
Exhaustion and uncertainty |
Guilt or Self- criticism |
Embarrassment/ anger or frustration |
Psychological burden and emotional reactions |
Personal strain | Role strain |
---|---|---|---|---|---|---|---|---|---|---|
Ankri; 2005 18 | N= 152; Dementia | -- | 1, 6,11, 12, 13,17 | -- | -- | 15,16, 20,21 | -- | 4,5,9,18,19,22 | -- | -- |
Knight; 2000 20 | N= 220 ; Dementia | .92 | -- | 2,8, 14 | -- | 20,21 | 4, 5, 6, 9, 10,11,12, 13,18 | -- | -- | -- |
Seng; 2010 22 | N= 238; Dementia | .93. (.89*) | -- | -- | -- | -- | -- | -- | -- | -- |
Higginson ; 2008 23 | N= 64; Cancer | .85 | -- | -- | -- | -- | -- | -- | -- | -- |
Siegert; 2010 15 | N= 222; Brain injury | -- | -- | -- | -- | -- | -- | -- | 1, 4, 5, 6, 9, 13, 14,16,18,19. | 2,3,7,8,10,11, 12,15,17,22 |
Springate ; 2014 21 | N=206; Dementia | .90 | 2, 3,6, 9, 10, 12,11, 17, 18, 22, | -- | -- | 5, 9, 20, 21 | 1, 4, 13, 14 | -- | -- | -- |
Whitlatch ; 1991 35 | N=113; Dementia | -- | -- | -- | -- | -- | -- | -- | 1,4,5,8, 9,14, 16,17,18,19, 20,21 | 2,3,6, 11,12,13 |
Hébert; 200013 | N= 312; Dementia | .92 | -- | -- | -- | -- | -- | -- | 17,18,9 | 13,11,12, 10,2,22, 6,7,3 |
Flynn Longmire ; 2011 19 | N= 175 Black &225 White; Dementia | .92 in Black, .93 in White | -- | 2, 8, 12, 14 | -- | 20, 21 | 4, 5, 6,9, 10,11,13, 18 | -- | -- | -- |
Legend: Numbers in the columns under each dimension indicate the item number from the Zarit Burden Index that falls under that dimension.
Test-retest reliability (n = 149)