Table 5.
Remarks and representative quotes relating to current decision involvement
| Paternalistic Decision-Making |
| 4 participants currently use PDM |
| “I just wanted help, you know? So I was trying to express myself the best I could. Tell [my physician] what I was going through and I put a lot of trust in doctors. So what they tell me, I do. You know, I don’t really listen to the other therapies or someone says try shark fin or do this or do that. I’m not really, I don’t venture out there too much. I just, the doctor tells me, that’s what I’m going to do. I just figured that they probably thought they’d know best and they’re going to try to help me, you know, so.” |
| -Male, 47 years-old |
| Shared Decision-Making |
| 15 participants currently use SDM |
| “I know [my physician and I] talked about a few different drugs. [My physician said] I can tell you that this one as of right now has the least potential side effects of any of them and I said, ‘Then that’s the one I want to hear about.’” |
| -Male, 57 years-old |
| “I think now that I’m older and I’ve had [RA] for you know 27 years, I mean I think I’m more alarmed and concerned about the overall effect of my organs you know. So I’m more worried about that with medication, you know, what is all that medication doing to my kidneys? Even though I know I have to be on medication I mean the least amount that I need, you know, is what I want. I’ve even cut back a little bit of my medication on my own. I mean my doctor knows it but, you know, because I don’t want to be on anything more than I need.” |
| -Female, 45 years-old |
| “Well as I learned more, and have become more comfortable talking about medical issues and particularly the diseases that I have. Yes I expect to be treated like the intelligent adult that I am and not just be told, ‘Here take this pill and it will be good for you.’ I expect to discuss to the things and to know that my physician is, you know, going to listen to what I have to say. I have an education, I know things too.” |
| -Female, 53 years-old |
| “The longer you have the disease, the longer the relationship with your doctor becomes one of, he has information that I don’t but I know my own body and how far I’ll go to try something. I've always had good relationships with my doctors where I have felt they listened to me. And [we] were in a discussion, not an argument, not orders from headquarters, or any of that kind of thing, you know, just working it out.” |
| -Female, 67 years-old |
| Informed Decision-Making |
| 1 participant currently uses IDM |
| “Nobody makes the decisions for me. I make them myself.” |
| -Male, 50 years-old |