Table I. Subject Demographics (N=146).

	N (%)
Participant
Patient	90 (61.6)
Caregiver for patient	36 (24.7)
Patient with caregiver	20 (13.7)
Male	73 (50.0)
Female	73 (50.0)
Patient age, mean (range)	22.3 (0-67)
Epidermolysis bullosa type and subtype
Dystrophic	97 (66.4)
Recessive	77 (79.4)
Dominant	14 (14.4)
Unknown	6 (6.2)
Junctional	14 (9.6)
Non-Herlitz	8 (57.1)
Unknown	6 (42.9)
Simplex	31 (21.2)
Dowling-Meara	7 (22.6)
Weber-Cockayne	8 (25.8)
Unknown	16 (51.6)
Unknown	4 (2.7)
Epidermolysis bullosa disease severity
Mild	38 (26.2)
Moderate	69 (47.6)
Severe	38 (26.2)