Table 2.
PROMIS Short Forms/Subscales | Anger | Anxiety | Depressive Symptoms | Fatigue | Mobility | Upper Extremity | Pain | Peer Relationships | |
---|---|---|---|---|---|---|---|---|---|
SLEDAI** | 0.12 | 0.06 | 0.03 | 0.11 | −0.23 | −0.12 | 0.16 | 0.11 | |
BILAG† | 0.01 | 0.07 | −0.03 | 0.08 | −0.26 | −0.13 | 0.21 | 0.11 | |
MD global‡ | 0.10 | 0.09 | 0.07 | 0.08 | −0.16 | −0.02 | 0.12 | 0.08 | |
SDI§ | −0.07 | −0.06 | −0.07 | −0.01 | −0.11 | −0.14 | −0.00 | −0.05 | |
Functional Disability Inventory | 0.37* | 0.48* | 0.42* | 0.62* | −0.70* | −0.55* | 0.62* | −0.19 | |
PedsQL-GC | Summary Score | −0.57* | −0.68* | −0.64* | −0.78* | 0.69* | 0.49* | −0.74* | 0.30* |
Physical function | −0.44* | −0.53* | −0.48* | −0.70* | 0.72* | 0.50* | −0.68* | 0.16 | |
Emotional function | −0.63* | −0.73* | −0.72* | −0.67* | 0.51* | 0.38* | −0.61* | 0.25 | |
Social function | −0.46* | −0.50* | −0.49* | −0.54* | 0.49* | 0.38* | −0.54* | 0.44* | |
School function | −0.45* | −0.58* | −0.53* | −0.71* | 0.52* | 0.33* | −0.66* | 0.26 | |
PedsQL-RM | Summary Score | −0.52* | −0.66* | −0.62* | −0.74* | 0.62* | 0.51* | −0.72* | 0.25 |
Pain & hurt | −0.44* | −0.52* | −0.47* | −0.72* | 0.68* | 0.44* | −0.72* | 0.12 | |
Daily activity | −0.34* | −0.43* | −0.41* | −0.53* | 0.56* | 0.61* | −0.54* | 0.19 | |
Treatment | −0.47* | −0.54* | −0.56* | −0.51* | 0.43* | 0.39* | −0.51* | 0.24 | |
Worry | −0.35* | −0.52* | −0.43* | −0.53* | 0.36* | 0.25 | −0.52* | 0.09 | |
Communication | −0.35* | −0.50* | −0.45* | −0.49* | 0.32* | 0.24 | −0.44* | 0.30 | |
SMILEY | Summary Score | 0.26 | 0.26 | 0.25 | 0.28 | −0.22 | −0.14 | 0.29 | 0.02 |
Effect on self | 0.33* | 0.34* | 0.34* | 0.39* | −0.30 | −0.18 | 0.39* | −0.09 | |
Limitations | 0.10 | 0.07 | 0.06 | 0.03 | −0.05 | −0.03 | 0.03 | 0.12 | |
Social | −0.46* | −0.50* | −0.49* | −0.54* | 0.49* | 0.38* | −0.54* | 0.44* | |
Burden of cSLE | 0.30 | 0.33* | 0.28 | 0.36* | −0.31* | −0.20 | 0.38* | −0.08 | |
CHAQ | Summary Score | 0.24 | 0.28 | 0.28 | 0.42* | −0.62* | −0.74* | 0.45* | −0.11 |
Dressing/grooming | 0.23 | 0.31* | 0.28 | 0.42* | −0.58* | −0.66* | 0.41* | −0.10 | |
Arising | 0.24 | 0.28 | 0.27 | 0.46* | −0.68* | −0.54* | 0.51* | −0.16 | |
Eating | 0.18 | 0.25 | 0.22 | 0.38* | −0.55* | −0.74* | 0.40* | −0.11 | |
Walking | 0.23 | 0.29 | 0.24 | 0.36* | −0.61* | −0.55* | 0.42* | −0.09 | |
Hygiene | 0.27 | 0.26 | 0.31* | 0.43* | −0.61* | −0.67* | 0.45* | −0.12 | |
Reach | 0.26 | 0.28 | 0.29 | 0.46* | −0.58* | −0.65* | 0.50* | −0.10 | |
Play | 0.32* | 0.37* | 0.34* | 0.53* | −0.68* | −0.60* | 0.59* | −0.14 | |
Grip | 0.28 | 0.33* | 0.31* | 0.44* | −0.54* | −0.69* | 0.49* | −0.18 | |
CHQ P-50 | Psychosocial Summary Score | −0.37* | −0.32* | −0.34* | −0.36* | 0.40* | 0.21 | −0.36* | 0.32* |
Physical Summary Score | −0.16 | −0.26 | −0.21 | −0.37* | 0.52* | 0.37* | −0.41* | 0.03 | |
Physical functioning | −0.17 | −0.26 | −0.22 | −0.35* | 0.57* | 0.33* | −0.35* | 0.06 | |
Bodily pain | −0.21 | −0.29 | −0.25 | −0.41* | 0.52* | 0.33* | −0.43* | 0.08 | |
General health perception | −0.11 | −0.27 | −0.18 | −0.25 | 0.28 | 0.21 | −0.30 | 0.02 | |
Role/social-physical | −0.24 | −0.20 | −0.27 | −0.28 | 0.34* | 0.32* | −0.33* | 0.18 | |
Role/social- emotional/behavioral | −0.16 | −0.25 | −0.25 | −0.35* | 0.49* | 0.35* | −0.37* | 0.17 | |
Self-esteem | −0.32* | −0.32* | −0.35* | −0.35* | 0.48* | 0.19 | −0.28 | 0.32* | |
Mental health | −0.45* | −0.37* | −0.40* | −0.37* | 0.37* | 0.20 | −0.38* | 0.21 | |
Behavior | −0.34* | −0.19 | −0.23 | −0.25 | 0.14 | 0.06 | −0.23 | 0.31* | |
Mental health | −0.45* | −0.37* | −0.40* | −0.37* | 0.37* | 0.20 | −0.38* | 0.21 |
Values are pooled correlation coefficients (r pool) across visits (n = 280 patient visits)
Represent p-value < 0.001 and r > 0.30
Systemic Lupus Erythematosus Disease Activity Index 2000
British Isles Lupus Activity Group index (A = 12, B = 8, C = 1, D = 0, E = 0)
MD global; 10 point Likert scale, 0 = inactive disease
Systemic Lupus International Collaborating Clinics/ACR Damage Index (range 0 to 47; 0 = absence of damage)