Table 1.
Demographic characteristics.
| Patient Characteristicsa | Patients invitedb (N=5,362) |
Patients who did not consent (N=4,759) |
Consenting patients with claimsb match (N=565) |
Consenting patients with no claims match (N=36) |
|
| Age in yrs (SD) | 54.7 (11.53) | 54.3 (11.60) | 57.4 (10.63) | 56.5 (11.02) | |
| Number of Females (%) | 3,546 (66.1) | 3,136 (65.9) | 385 (68.1) | 25 (69.4) | |
| Primary condition in PLM | |||||
| MS (%) | 3,869 (72.2) | 3,470 (72.9) | 379 (67.1) | 20 (55.6) | |
| PD (%) | 1,333 (24.9) | 1,151 (24.2) | 168 (29.7) | 14 (38.9) | |
| Other (%) | 160 (2.9) | 138 (2.9) | 18 (3.2) | 2 (5.6) | |
| Patient Reports MS or PD Diagnosed by Physician (%) | 4,512 (84.2) | 3,934 (73.4) | 544 (96.3) | 34 (94.4) | |
| PLM patients with MS as primary or secondary condition (%) | 3,976 (74.2) | 3,564 (74.9) | 392 (69.4) | 21 (58.3) | |
| MS subtype (% MS) | |||||
| Relapsing-Remitting | 2,429 (61.1) | 2,165 (60.8) | 250 (63.8) | 14 (66.7) | |
| Primary progressive | 253 (6.4) | 227 (6.4) | 25 (6.4) | 1 (4.76) | |
| Secondary progressive | 551 (13.9) | 470 (13.2) | 78 (19.9) | 3 (14.3) | |
| Progressive relapsing | 127 (3.2) | 116 (3.3) | 10 (2.6) | 1 (4.8) | |
| Unreported | 616 (15.5) | 586 (16.5) | 29 (7.4) | 2 (9.5) | |
| Years since MS Diagnosisa (%) | |||||
| 0 - ≤5 Years | 581 (14.6) | 524 (14.7) | 53 (13.5) | 4 (19.05) | |
| >5 - ≤10 Years | 1,102 (27.7) | 980 (27.5) | 116 (29.6) | 6 (28.6) | |
| >10 - ≤15 Years | 711 (17.9) | 619 (17.4) | 87 (22.2) | 5 (23.8) | |
| >15 - ≤20 Years | 408 (10.3) | 358 (10.0) | 48 (12.2) | 2 (9.5) | |
| >20 Years | 566 (14.3) | 492 (10.8) | 71 (18.1) | 3 (14.3) | |
| [Not Reported] | 609 (15.3) | 591 (16.6) | 17 (4.3) | 1 (4.8) | |
| Reported MS DMT use in PLM (%) | 3,118 (78.4) | 2,751 (77.2) | 351 (90.0) | 16 (76.2) | |
| Reported Insurance Type (%) | |||||
| Indian Health Service | 1 (0.02) | 1 (0.02) | 0 (0.0) | 0 (0.0) | |
| Medicaid/ other low-income plan | 195 (3.64) | 165 (3.47) | 29 (5.13) | 1 (2.78) | |
| Medicare | 1023 (19.08) | 799 (16.79) | 209 (36.99) | 15 (41.67) | |
| National health service | 7 (0.13) | 7 (0.15) | |||
| Other type of insurance | 49 (0.91) | 42 (0.88) | 6 (1.06) | 1 (2.78) | |
| Private (individual plan) | 210 (3.92) | 183 (3.85) | 27 (4.78) | ||
| Private (via employer /union) | 1351 (25.20) | 1141 (23.98) | 203 (35.93) | 7 (19.44) | |
| TRICARE (or oth military ins) | 55 (1.03) | 47 (0.99) | 7 (1.24) | 1 (2.78) | |
| Veteran's Administration | 69 (1.29) | 54 (1.13) | 13 (2.30) | 2 (5.56) | |
| No Insurance | 87 (1.62) | 79 (1.66) | 6 (1.06) | 2 (5.56) | |
| Prefer not to answer | 77 (1.44) | 74 (1.55) | 2 (0.35) | 1 (2.78) | |
| [Not Reported] | 2238 (41.74) | 2167 (45.53) | 63 (11.15) | 6 (16.67) | |
aSource for all characteristics is PLM; all statistics reported are n (%) unless otherwise noted.
bTwo patients who were invited, consented and had at least 1 claim in the claims dataset asked to have their profiles removed from PLM and are, therefore, not represented in this analysis.