9:00 a.m.	Welcome and introductions
9:30 a.m.	Overview and discussion: background on development of technologies for ultra-rare diseases
10:00 a.m.	Overview and discussion: technical problems with use of conventional health technology assessments for technologies for ultra-rare diseases
11:30 a.m.	Identify areas of agreement on potentially inappropriate use of conventional health technology assessments for technologies for ultra-rare diseases
12:15 p.m.	Discussion: potential alternatives to evaluate technologies for ultra-rare diseases
2:00 p.m.	Prioritize potential alternative evaluation approaches for further discussion and next steps
3:00 p.m.	Workshop concludes