Table 3.
Body Image Survey Results for Entire Sample: Participant Concerns and Difficulties
| Presence of Body Image Concerns | ||
|---|---|---|
| Type of Bodily Change | Currently | At some point following diagnosis |
| Speaking | 70 (25.74) | 100 (35.84) |
| Scarring/disfigurement | 65 (23.90) | 118 (42.29) |
| Eating around others | 56 (20.59) | 70 (25.09) |
| Loss of teeth | 54 (19.85) | 84 (30.11) |
| Swelling | 30 (11.03) | 49 (17.56) |
| Drooling | 29 (10.66) | 49 (17.56) |
| Hair loss | 28 (10.29) | 49 (17.56) |
| Skin discoloration | 25 (9.19) | 41 (14.70) |
| Weight loss | 21 (7.72) | 45 (16.12) |
| Use of a prosthetic device | 20 (7.35) | 33 (11.83) |
| Weight gain | 15 (5.51) | 17 (6.09) |
| Removal of nose | 14 (5.15) | 20 (7.17) |
| Removal of eye | 9 (3.31) | 14 (5.02) |
| Removal of ear | 8 (2.94) | 10 (3.58) |
| Presence of stoma/trach | 8 (2.94) | 15 (5.38) |
| Other (e.g., hearing loss, eye tearing, loss of smell/taste, dry mouth, numbness, nose drainage) |
29 (10.66) | 44 (15.77) |
| Cognitive/Behavioral Difficulties Associated with Body Image Concerns | |||
|---|---|---|---|
| Yes, currently | Yes, not currently |
No | |
| Frequent thoughts about appearance changes | 71 (25.91) | 72 (26.28) | 131 (47.81) |
| Avoidance of activities due to appearance changes |
38 (13.87) | 35 (12.77) | 201 (73.36) |
| Avoidance of activities due to speech difficulties |
30 (10.95) | 28 (10.22) | 216 (78.83) |
| Avoidance of activities due to eating habits | 35 (12.77) | 32 (11.68) | 207 (75.55) |
| Increased time spent in grooming activities | 31 (11.31) | 23 (8.39) | 220 (80.29) |
| Avoidance of grooming activities | 6 (2.19) | 16 (5.84) | 252 (91.97) |
| Reassurance seeking about appearance | 27 (9.85) | 35 (12.77) | 212 (77.37) |
Note. All values presented as frequency (percent). Total N=280. Percentages were calculated based on the number of participants responding to each individual item.