Table 1.
General information | ||
---|---|---|
Patient population | Incident prostate cancer | Data collection since February 2010 |
Data coverage | Nationwide | 22 urological and oncological departments participating in data registration |
Data collection | Continuous | Data linkage from central registries combined with online prospective data collection of key clinical variables by treating clinicians |
Clinical quality indicators | N=10 | |
Clinical data registration forms | Diagnosis Clinical Data Registration Form Urology Clinical Data Registration Form Oncology Clinical Data Registration Form |
|
PROM questionnaires | Data collection since May 2011 At diagnosis 1-year follow-up 3-year follow-up |
|
Treatment variables | Oncology Surgery Radiation therapy Endocrine treatment |
|
Pathology variables | Gleason score TNM stage |
|
Laboratory variable | PSA at diagnosis | |
Comorbidity variablesa | CCI 0= none 1= low 2= medium 3= high |
|
Administrative variables | Region Hospital site Department |
Note:
CCI scores are systematically added to DAPROCAdata during conversion to the DNKK.
Abbreviations: CCI, Charlson Comorbidity Index; DAPROCAdata, Danish Prostate Cancer Database; DNKK, Danish National Cancer Clinical Database; PROM, patient-reported outcome measures; PSA, prostate-specific antigen; TNM, tumor, node, and metastasis cancer stage classification.