Table 1.

Key search terms

(lay OR patient* OR public OR citizen$1) AND (attitude* OR view$1 OR perspective* OR opinion$1) AND (data OR record$1) AND (share$ OR sharing OR link$2 OR linkage) AND Research AND (access OR purpose$1) AND (qualitative OR ethnograph* OR “grounded theory” OR “in depth interview$1” OR “structured interview$1” OR “focus group$1” OR “case study” OR “case studies” OR “case series” OR “citizen$2 juries” OR vignette* OR observation*)
□ Asterisks (“*”) are used as a wildcard to allow for any given search term to be truncated or remain the same.
□ Dollar signs (“$”) followed by a number refer to the number of additional characters allowed for each selected term.