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. 2016 Dec;106(12):e11–e12. doi: 10.2105/AJPH.2016.303240e

TABLE 1—

Characteristics of and Numbers of Deaths in the Intellectual Disability and Matched Control Groups: Selected UK General Practices, 2009–2013

Intellectual Disability Group
Control Group
Characteristic of Intellectual Disability Adult Mean Age, y (SD) No. Deaths, No. (%) No. Deaths, No. (%)
Total 39.9 (16.2) 16 666 656 (3.94) 113 562 1 358 (1.20)
Gender
 Female 41.3 (16.4) 6 989 291 (4.16) 47 587 538 (1.13)
 Male 38.8 (15.9) 9 677 365 (3.77) 65 975 820 (1.24)
Age, y
 18–34 24.2 (5.1) 6 981 48 (0.69) 46 939 69 (0.15)
 35–54 44.2 (5.4) 6 283 167 (2.66) 43 123 276 (0.64)
 ≥ 55 64.0 (7.1) 3 402 441 (12.96) 23 500 1 013 (4.31)
Down syndrome
 Yes 39.1 (14.4) 1 793 118 (6.58) 12 226 92 (0.75)
 No 40.0 (16.4) 14 873 538 (3.62) 101 336 1 266 (1.25)
High level of support needsa
 Yes 41.4 (16.4) 3 263 194 (5.94) 22 298 302 (1.35)
 No 39.5 (16.1) 13 403 462 (3.45) 91 264 1 056 (1.16)
Communal/shared accommodations
 Yes 47.2 (15.7) 3 392 265 (7.81) 23 117 416 (1.80)
 No 38.0 (15.8) 13 274 391 (2.90) 90 445 942 (1.04)
Autism spectrum disorder
 Yes 30.5 (13.3) 1 532 15 (0.98) 10 374 44 (0.42)
 No 40.8 (16.1) 15 134 641 (4.24) 103 188 1 314 (1.27)
Epilepsy
 Yes 41.0 (15.3) 2 884 167 (5.79) 19 705 205 (1.04)
 No 39.6 (16.3) 13 782 489 (3.55) 93 857 1 153 (1.23)
Any subgroup categorizationb
 Yes 40.6 (16.4) 8 541 446 (5.22) 58 194 703 (1.21)
 No 39.1 (16.0) 8 125 210 (2.58) 55 368 655 (1.18)
a

Classified by a general practitioner as having severe or profound intellectual disability or has ≥ 2 of the following: epilepsy, cerebral palsy or significant mobility problem (wheelchair use or greater), severe visual impairment, severe hearing impairment, continence problem, or use of percutaneous endoscopic gastrostomy feeding.

b

Down syndrome, high level of support needs, communal/shared accommodations, autism, or epilepsy.