Table 3.
Use of other outcome measures across included records
| Quality of life | Mood | Behaviour | Global | |||||
|---|---|---|---|---|---|---|---|---|
| Number of records reporteda | 102 (13 %) | 174 (22 %) | 303 (38 %) | 247 (31 %) | ||||
| Total number of assessmentsb | 118 | 207 | 365 | 279 | ||||
| Number of unique assessmentsc | 21 | 41 | 32 | 25 | ||||
| Assessment tool | n | Assessment tool | n | Assessment tool | n | Assessment tool | n | |
| 1. Quality of Life in Alzheimer’s Disease | 36 | 1. Geriatric Depression Scale | 47 | 1. Neuropsychiatric Inventory | 183 | 1. Clinician’s Interview-Based Impression of Change plus caregiver interview | 41 | |
| 2. No tool | 27 | 2. Cornell Scale for Depression in Dementia | 41 | 2. Cohen-Mansfield Agitation Inventory | 53 | 2. Clinical Dementia Rating – Sum of Boxes | 30 | |
| 3. EQ-5D | 15 | 3. Brief Psychiatric Rating Scale | 13 | 3. No tool | 37 | 3. Clinical Global Impression | 29 | |
| 4. DEMQOL/DEMQOL proxy | 10 | 3. Hamilton Rating Scale for Depression | 13 | 4. Neuropsychiatric Inventory – Nursing Home | 16 | 4. Clinical Dementia Rating | 28 | |
| 5. QUALID and QUALIDEM | 4 | 5. No tool | 12 | 4. BEHAVE-AD | 16 | 5. Clinical Global Impression of Change | 27 | |
Abbreviations: EQ-5D EuroQol questionnaire, DEMQOL Dementia Quality of Life measure, QUALID Quality of life in late-stage dementia, QUALIDEM a dementia specific quality of life questionnaire rated by professionals, BEHAVE-AD Behavioral Pathology in Alzheimer’s Disease
aNumber of records in ALOIS where a measure was reported at least one
bTotal number of times an outcome measure is used in all included records
cTotal number of unique assessment measures used at least once