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. 2016 Nov 21;11:154. doi: 10.1186/s13023-016-0537-5

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© The Author(s). 2016

Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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Fig. 4 — Responses to aHUS Alliance 2016 survey question on how to encourage patient participation in research. Patients were asked “In your opinion, what would encourage greater patient participation in research studies or clinical trials?”. Responses were fixed (no free text option) and more than one option could be selected. This question was only included in the 2016 survey