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. 2016 Nov 16;5(6):R44–R54. doi: 10.1530/EC-16-0028

Table 1.

Critical steps in transition.

Steps Actions Ref.
1. Ask young people and their parents • Inquire about patients’ feelings and concerns
• Understand patients’ needs to balance independence with continued care and education
• Solicit desired outcomes after transfer
• Discuss transfer specifics (early preparation and clinic location)
(3)
2. Engage/train colleagues • Different perceptions of levels of competency and involvement of paediatric vs adult physicians during transition care
• Lack of training and inadequate resources are main barriers to successful transition service
(4)
3. Choose a clinic structure • Multidisciplinary collaboration across all health sectors, including primary and secondary care, enhances successful transfer of care (5)
4. Structured transition programme • Requested by adolescents with discussions starting early in disease course, possibly soon after diagnosis
• Example of successful generic transition programme is ‘Ready Steady Go’, implemented within a large National Health Service teaching hospital in the UK
(3)
(6)
(7)
5. Help with navigation • Both hands-on and hands-off approach beneficial; a transitional care coordinator can assist with young people navigating transition and transfer and access to adult services (8)
6. Monitoring • Useful tools to monitor successful outcomes can include evaluation of specific disease markers (e.g., HbA1c), quality-of-life questionnaires, monitoring of attendance/adherence at clinic visits and reduced morbidity/mortality (9)
7. Engaging the disengaged • Get adolescents involved in monitoring and design; use technology-based transition interventions designed for adolescents with diverse chronic illnesses (10)