Table 1.
Critical steps in transition.
Steps | Actions | Ref. |
---|---|---|
1. Ask young people and their parents | • Inquire about patients’ feelings and concerns • Understand patients’ needs to balance independence with continued care and education • Solicit desired outcomes after transfer • Discuss transfer specifics (early preparation and clinic location) |
(3) |
2. Engage/train colleagues | • Different perceptions of levels of competency and involvement of paediatric vs adult physicians during transition care • Lack of training and inadequate resources are main barriers to successful transition service |
(4) |
3. Choose a clinic structure | • Multidisciplinary collaboration across all health sectors, including primary and secondary care, enhances successful transfer of care | (5) |
4. Structured transition programme | • Requested by adolescents with discussions starting early in disease course, possibly soon after diagnosis • Example of successful generic transition programme is ‘Ready Steady Go’, implemented within a large National Health Service teaching hospital in the UK |
(3) (6) (7) |
5. Help with navigation | • Both hands-on and hands-off approach beneficial; a transitional care coordinator can assist with young people navigating transition and transfer and access to adult services | (8) |
6. Monitoring | • Useful tools to monitor successful outcomes can include evaluation of specific disease markers (e.g., HbA1c), quality-of-life questionnaires, monitoring of attendance/adherence at clinic visits and reduced morbidity/mortality | (9) |
7. Engaging the disengaged | • Get adolescents involved in monitoring and design; use technology-based transition interventions designed for adolescents with diverse chronic illnesses | (10) |