Fig. 1.

The relation between parental knowledge about NBSCF measured by the knowledge test score (range 0–11) and the level of parental anxiety and depression measured by the HADS-questionnaire. The questionnaire included four items of the Hospital Anxiety And depression Scale (HADS), namely three anxiety items and one item on depression (scale 1 to 4; 0 = negative and 4 = positive). We made a sum scale of the four HADS items (Cronbach'salpha was 0771) with a range of 4 to 16 points. High sum scores mean low levels of anxiety and depression. The knowledge test has 11 questions about cystic fibrosis and the screening test subjects that were listed in the leaflet that parents received (1 point for each good answer, score 1 to 11 points).