Table 5.
Issues that can seriously impact long-term survival and components of care that are important for long-term survival for Case 1
| Issues that can seriously impact long-term survival | n (%) |
|---|---|
| Symptom management | 38 (15.8) |
| Childbearing | 37 (15.4) |
| Support for families of patients | 34 (14.2) |
| Risk of recurrence and progression of disease status | 34 (14.2) |
| Risks related to treatment | 27 (11.3) |
| Issues with social rehabilitation | 13 (5.4) |
| Change of role in society/life plan | 12 (5.0) |
| Feeling of burden about hospital visits | 11 (4.6) |
| Support provided by others except family | 8 (3.3) |
| Financial issues | 7 (2.9) |
| Sexuality | 7 (2.9) |
| Understanding the disease | 5 (2.1) |
| Others (being young at 24 years of age, decision-making of distress, coexistence with the disease, keeping the identity) | 4 (1.7) |
| Spiritual issues | 3 (1.3) |
| Total | 240 (100) |
| Components of care that are important for long-term survival | |
| Help with symptom management/self-care | 51 (22.4) |
| Support for families | 31 (13.6) |
| Psychological support for patients | 26 (11.4) |
| Help with strengthening social support | 24 (10.5) |
| Help with further understanding of disease and treatment | 19 (8.3) |
| Help with sexuality | 14 (6.1) |
| Help with childbearing/family plan | 12 (5.3) |
| Help with continuation of regular hospital visits | 11 (4.8) |
| Help with change of roles/life plan | 9 (4.0) |
| Assistance with social rehabilitation | 9 (4.0) |
| Help with decision-making | 7 (3.1) |
| Assistance with financial issues | 6 (2.6) |
| Spiritual care | 5 (2.2) |
| Help with maintenance and enhancement of health | 4 (1.6) |
| Total | 228 (100) |