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. Author manuscript; available in PMC: 2018 Jan 1.
Published in final edited form as: J Pediatr Health Care. 2016 May 28;31(1):96–103. doi: 10.1016/j.pedhc.2016.04.015

Table 1.

Descriptive Statistics of Study Variables (N=207)

Variables N Mean/Percentage Standard Deviation Minimum Maximum
Hospice Enrollment (%) 32 15.46 --- 0 1
Hospice Length of Stay 207 5.40 23.49 0 191
Female (%) 94 45.41 --- 0 1
Race
 Caucasian (%) 19 10.00 --- 0 1
 Non- Caucasian (%) 188 90.00 --- 0 1
Hispanic (%) 78 37.68 --- 0 1
Usual Source of Care (%) 78 37.68 --- 0 1
Hospice Accessibility (%) 168 81.16 --- 0 1
Hospital Accessibility (%) 115 55.56 --- 0 1
Diagnosis
 Congenital (%) 68 32.85 --- 0 1
 Cardiovascular (%) 149 71.98 --- 0 1
 Neuromuscular (%) 64 30.92 --- 0 1
 Gastrointestinal (%) 21 10.14 --- 0 1
 Respiratory (%) 46 22.22 --- 0 1
Comorbidities (%) 113 54.59 --- 0 1
Health Status
 Disability Status (%) 174 84.06 --- 0 1
 Psychological Status (%) 34 16.43 --- 0 1
 Functional Status (%) 109 52.66 --- 0 1
Years
 2007 (%) 48 23.19 --- 0 1
 2008 (%) 61 29.47 --- 0 1
 2009 (%) 55 26.57 --- 0 1
 2010 (%) 43 20.77 --- 0 1