Table 5.

Key themes about acceptability and feasibility from the interviews with participants and carers

Themes	Subthemes
Feasibility and acceptability of participation	Most people enjoyed taking part in WIELD and would recommend it to others. Most people understood the need for random allocation and accepted this was part of the study. Study information explained the study well and was suitable for most participants. Study visit went well and everything was explained clearly.
Feasibility and acceptability of data collection methods	Completing the questionnaires four times was fine for most people. Most participants were involved in completing the questionnaires. Most people felt that the questions and language were clear but there was some room for improvement. Postal questionnaires were fine for most people but it would be helpful to have options to complete the questionnaire online, on the phone or at a visit. Some carers and participants sometimes found it challenging to find the time to complete the questionnaires. Some people completed the seizure diary but others did not. Some people thought the questionnaires were quite long but this was not a problem for most people. Specific questions could be difficult to answer.
Use and acceptability of the booklet	A minority of carers and participants were already familiar with Beyond Words. Most participants engaged with the booklet and could identify benefits. Control participants had differing views on the booklet after first looking at it. The booklet was used in different ways.
Feasibility of routine use of the booklet	Mixed feelings about level of support needed to use the booklet. Need to be aware if person with learning disabilities is anxious as the booklet could make this worse. The booklet could be implemented in the health and social care system. The booklet could be useful for other people with epilepsy. The booklet is useful for people with difficulties with verbal communication. The booklet may be most useful when someone has just been diagnosed. The booklet may be particularly helpful to explain epilepsy to others. The time needed to use the booklet could be a barrier.

WIELD, Wordless Intervention for Epilepsy in Learning Disabilities.