Table 2.

Key themes from the interviews with participants and carers.

Themes	Subthemes
Participant characteristics	•Additional physical or mental health problems. •Variation in communication abilities. •Satisfaction with their living situation, care, and support. •Varying, but stable, levels of support.
Living with epilepsy	•Long history of epilepsy. •Wide variation in nature of seizures.
Epilepsy management and information needs	•Burden of epilepsy on participants, carers and family. •Mixed experiences and needs regarding information and support. •Satisfaction with clinical management through epilepsy clinics •Medication management