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. Author manuscript; available in PMC: 2017 Dec 1.
Published in final edited form as: Neuromuscul Disord. 2016 Sep 16;26(12):860–864. doi: 10.1016/j.nmd.2016.09.008

Table 3.

Reasons why women have not discussed carrier risk information with their full sisters

Please share why you have not discussed carrier information with your full sisters. Select all that apply. Number of responses
I do not think they are at risk 3
I am worried the information will upset them 2
It makes me too upset to discuss it with them 1
I think they already understand their carrier risk 1
They told me they already understand their carrier risk 1
We are not close/do not speak 0
We haven’t had time to talk about it 0
I am worried I will get the information wrong 0
They told me they didn’t want to know the information 0
They have already had carrier testing 0
Total question responses 8

Note: limited to women whose full sisters are at risk to be carriers based on the respondents positive or unknown carrier status.