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. Author manuscript; available in PMC: 2018 Jan 1.
Published in final edited form as: J Pediatr Health Care. 2016 Jul 25;31(1):e1–e6. doi: 10.1016/j.pedhc.2016.06.004
1. Please select the option below that best describes your current position
  1. Attending

  2. Fellow

  3. Nurse Practitioner

  4. Physician Assistant

  5. Registered Nurse

2. For a given patient being seen in the outpatient setting, who is/are the main medical provider(s) responsible for history, physical exam, lab review and prescription writing during each clinic visit?
  1. Attending alone

  2. Fellow with attending supervision

  3. NP with attending supervision

  4. PA with attending supervision

  5. Other (please specify)

3. Is/are the providers identified in the above question the same people who provide patient education (ie. dosing, calendar, duration) regarding home administration of oral chemotherapy? (Please select all that apply)
  1. Yes

  2. No

  3. Sometimes

4. If different from above, who are the providers responsible for patient-education during clinic visits? (Please select all that apply)
  1. Attending

  2. Fellow

  3. Nurse Practitioner

  4. Physician Assistant

  5. Registered Nurse

  6. Other (please specify)

5. At the initiation of Consolidation II and Continuation phase, how is information about oral chemotherapy administration provided to patients and caregivers (Please select all that apply)
  1. Drug information printed summaries

  2. Direct discussion with patient/caregiver

  3. Other (please specify)

6. How do you assess parent/caregiver understanding of information given by the medical team?
  1. Ask patient/caregiver to describe the information they were given

  2. No formal assessment

  3. Other (please specify)

7. Oral Dexamethasone: Once a patient is in his/her Continuation phase of therapy, how frequently do you (please select one best option)
Once at the beginning of Continuation At the start of every new cycle Every few months Varies depending on the family Never I do not personally review
Review the fact that in this setting, Dexamethasone is a chemotherapeutic agent? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
Identify the caregiver responsible for medication administration at home? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
Inquire about missed medication doses? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
8. Mercaptopurine (6-MP): Once a patient is in his/her Continuation phase of therapy, how frequently do you (please select one best option)
Once at the beginning of Continuation phase of therapy At the start of every new cycle Every few months Varies depending on the family Never I do not personally review
Review the fact that 6-MP is a chemotherapeutic agent? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
Identify the caregiver responsible for medication administration at home? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
Review administration guidelines for 6-MP (ie. dairy consumption and daily dose-timing)? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
Inquire about missed medication doses? graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg graphic file with name nihms798734t1.jpg
9. In your opinion, how well do you think your patients and their caregivers understand the importance of oral chemotherapy in the context of their overall treatment plan?
  1. All of my patients/caregivers understand

  2. Majority of my patients/caregivers understand

  3. Minority of my patients/caregivers understand

  4. Unsure

10. If an educational intervention were to be developed in order to improve understanding of oral chemotherapy administration by patients/caregivers, what materials or teaching methods (frequency, aims) might prove useful? What suggestions do you have regarding approach to patient education and optimization of health literacy in your patients and their caregivers?